thanks for the reply.   i forgot to come back and update you on my journey.   so i had the CT scan and ended up seeing my gyn on the monday. i was desperate for something and although it wasn’t her forte, she took me through the results. it said a lymph node looked suspicious but there was no spread to lungs, bone or liver. that was very reassuring.   i saw the gyn onc the next day who said “im not worried about you at all” but then told me the next step was sentinel lymph node dissection (bilateral) and another wide local excision to remove more margin off the VIN taken in the original procedure. this was early december and surgery was booked for early jan. she told me to forget about this and go enjoy my christmas. easier said than done but ok. i managed to get through the holidays without worrying too much.   january rolled around and i had my nuclear scan last week then the surgery the following morning. all went well and i was sent home after 2 nights at the hospital. the drains were the worst part. i’ve been home resting since then and my gyn onc called on tuesday with my results. it was a tense wait for that phone call not knowing what the result would be (she assured me the chance of lymph node spread was very small but still, you just never know) but she called and the nodes were all clear. she also said the extra tissue she took in the second wide local excision showed VIN changes but it was all excised with good margins and in her words “you have a perfectly healthy vulva now”. epic relief. there are no words.   ill be watched like a hawk now and of course i’m petrified of a reoccurrence but i’ve been given a reprieve and i’ll take it. i’m so grateful 💜💜 ... View more

sorry you’re being brushed off. quite frankly this is appalling. it sounds like you’ve got some pretty serious symptoms going on, what are they waiting for? i’m sorry the public system is being so dismissive.   i’d 100% pay to see a gynecologist, they don’t mess around and you’ll get some answers asap hopefully.    please give us an update and let us know how you’re going x ... View more