Hi Mel, I am really sorry to hear about your dad. I know exactly waht you are going through - it is 2 months since mum passed today - actually near on - on the hour atm. I know there is NOTHING i can say/do to rise you hopes etc.. basically just be there if you need someone to talk to. I hope you get to spend some quality time with your father. Not far from my thoughts rach xo ... View more

Oh Tanya - No words can express the way your feeling right now... im sure he put up a very brave fight - Take care - will be thinking of you tomorrow XX ... View more

Hi Di Thanks fo your kind words - Stoked we live close so we spent lots of good times together. and i will always have memories! X Missy, Mums tumour was also un-operable - all they could do was cut the top off it not actually dig around and get it all out. Im hearing ya with the doctors - and when they do decide to talk its in what sounds like Jibberish - its like hello - we havent done years of study, put it plain and simple. We were lucky to have a fantastic doctor here that spelt it all out which was fab and she was there till mum passed - but those specialists in the city... Nope dont get them! Its not a nice thing to watch at all - and i wish i could say its gets easier, but it hasnt for me yet. All i can say i spend as much time as you can with them - but you know they are never gone... most nights i head outside and talk for about 5 minutes to the sky - i must look like an absolute idiot - but if im feeling lonely or just want to talk to my mum - well thats what i do or i write to her on facebook and it sounds stupid - but it works. i have had some real downers and just going and sitting with her at her grave you have this whole weight lifted. Your Dad will walk with you no matter what your doing or where you are.. just make the most now while tou can still touch and hold them. Oh and take lots of photos/videos - they are worth more than words can explain. Take Care Chick XO ... View more

Hi All, My mum was diagnosed with a grade 4 GBM inJan 2010. They gave her 12 - 18 months - this was devastating as mum was only 46. It is such a horrible and painful disease to watch someone you love go through - as harsh as it sounds loosing her in a freak accident would have been easier (yes that sounds horrible and wrong) but to watch a loved one be in pain and deteriorate right infront of your eyes daily is just heart breaking. Trying to explain to my kids (her grandkids) what is happening to nanna - is just really hard, especially when you dont really know yourself. My mum had her tumour in the back left hand side - which meant he right side was affected quite dramatically. She ended up with a tingleing/numb feeling in that right side after about 6 months after diagnosis. They changed her medication - as she was starting to swell on her brain - which was actually causing the right side to loose feeling. Mum suffered from seizures - but after the first few she could actually tell you that one was coming on. Towards the end her speech got - not bad, but sluggish - and she got forgetful - she didn’t forget any ones names but she would start a conversation then get half way through and go "what was I going to say" so you had to constantly jog her memory. She used to say that this was due to her medication - the stuff they had her on reduced the swelling , which meant she could walk around etc - but she felt all foggy in her head, so she couldn’t really have a proper conversation - she said it felt like she was really really high.. So it was a loose, loose situation. Mum had Operation, Radio and Chemo. Yeah I feel that it did give us more time - but they had to then stop the chemo, as it would start doing more harm than good (killing the good cells) they did have the option to operate again - but the risk leaving her paralysed was pretty high. By December the tumour had pretty much covered the entire brain. In September 2010 we went on our last family holiday - it was fantastic, just to spend time- whether it be relaxing by the pool, going shopping (mum loved retail therapy) or just sitting just spending quality time together. Mum ended up in hospital 2 days before Christmas - she was mainly un-conscious all this time and passed away 3 days after Christmas. Mum spent majority of the time at home *except for when away for tests* She didn’t want to be bed ridden - so I am glad it was only a week. The doctors were pretty right with their 12-18 months - we got 11and half- VERY special months with her - like you guys have said this is a BASTARD disease - but once diagnosed - It’s the Quality of the time you spend with the person. I hope I havent offended anyone with being blunt in places - but I have been there from start to finish, so if it can help anyone with what they are going through then im stoked... ... View more

Can you send me a message also.. ... View more