Thanks so much Di. Your post was so helpful. But today we received terrible news about my mother. Her kidneys are now failing because the cancer has grown around her urethras and is restricting the flow of urine. So she is becoming toxic inside.
In some ways I am extremely angry at the doctors because they didn't explain any of this well to my brother and I. But today a palliative care nurse explained that at the rate mum's kidney's are failing, which took a dramatic dive late last week and over the weekend, means she could now pass away at any moment. It also explains WHY she has not been getting out of bed or eating and also explains her very odd behaviour. Like yesterday she was asking me where the cow went. And today she was saying my brother's feet are black and that means he also has the cancer. The nurse told me that she will start losing her mind, stop being able to get out of bed and stop eating. And I said "She's already doing ALL of those things!!" So my talk to "get up out of bed and eat and you can come home" was such a stupid thing to say when she really CAN'T do those things. :(
Anyway, she's being moved to a palliative care hospital tomorrow, where I hope she will receive much better care from the staff. Today in hospital she asked a nurse to help her go to the toilet and the nurse said "You never do anything on the toilet why don't I just get you a bed pan?" To which mum started crying and said "Anyone else can just get up and go to the toilet and I need help and you won't help me!" The nurse did help her but was rolling her eyes as she did it. Treat my mum with some respect please.
Gosh it's just so tough seeing my poor mother like this and needing help from staff and them treating her poorly. She wouldn't let me take her to the toilet tough, because she didn't want her daughter helping her.
Anyway, it seems suddenly from a few months left we are down to days or a couple of weeks if lucky. And I will spend all the time I can with her and hope the new hospital is a lot better.
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