August 2012
Hi Sassykali,
It's been a while since I have been on the site and your message came up. I have moved on, slowly, and I can tell you that it does get better. I'm coming up to my three year anniversary. I'm not going to tell you that life is perfect, cause it's not. I still have my moments and my memory I am told will never be quite them same but at least I am developing ways to cope with it. It did take time to accept my new reality.
I do really understand what you are going through. I had a 'unique form' of endometrial cancer and menopause is a bitch! Most of my friends did disappear, and at the time it really hurt, but the benefit is that I now have a small circle of friends who I can focus on and I know they love me for who I am and accept me the way I am (post cancer). I cherish them for their on-going support and I thank God that the others have fallen by the wayside because I don't have the time or energy to put into false relationships.
I am part of the gynecological group on this site which has regular chat sessions. Unfortunately it is on during a time when I cannot make it but you might like to consider joining.
Sometimes I wish I could sit down face to face with other survivors 'like me' just to make sure that I am not alone. Talking helps and talking to people with common understanding is even better.
I really hope that you have the strength to keep going.
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April 2011
Having a bad day with thoughts running around in my head that just won't stop.
I was told yesterday that the reason one of my students has been giving me grief all year is because she doesn't want to get close to me in case I die.
What am I supposed to do with this information?
I am made to feel like I am to blame for the behaviour of other people because they can't cope. Well guess what, It's NOT MY FAULT! and i'm sick of the way I get treated. This is the latest in a long line of comments that people think it's OK to dump on me. When will people take responsibility for themselves and stop projecting onto me? I'm the one with cancer and quite frankly I CAN'T COPE! I struggle to sort out my own feelings half the time and people want me to sort out theirs as well, STUFF THAT FOR A JOKE!
Could someone tell the world to stop, cause I want to get off for a while, I'm getting too dizzy?
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April 2011
Hi Mike,
I didn't stay all night but all the kids did! We had tents and they all took it in turns to walk through the night. The eldest who was 12 stayed up all night the others crashed about 11pm but they were up bright and early the next morning to continue.
Ally
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April 2011
Hi Mike,
I was in the midst of my treatment last year when a team from my work did it. And I was able to participate in my first relay for life in Canberra last weekend. I wasn't sure how I would go emotionally or physically but I found it quite a positive experience. I only managed to go for a couple of hours and it kind of wiped me out but i'm looking forward to next year and being able to stay longer.
On the kid front there were heaps of kids, actually there were a lot more kids and teenagers than i expected. There was a lot of things for them to do as well as walk. We had about 5 kids in our team and they handled it really well because it is such a positive atmosphere.
I say go for it.
Ally
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March 2011
Hi,
I also have endometrial cancer (stage 3). At the age of 38 I had a modified total hyserectomy (they left me with ovaries - not that they're of any use now!) with lymph nodes removed. I had six weeks of radiation and they also gave me chemo on day 1 of the radiation cycle as it is suppose to help the radiation work. I was suppose to have another chemo on day 21 but I was too sick from the radiation to have it. After radiation I had two weeks break and then four cycles of chemo. I made it through and I am doing the three monthly check ups, i'm 9 months post treatment and so far so good. Just recovering from the treatment.
Both treatments do their own thing and the chemo drugs I had with the radiation were different from the last four. Focus on recovering from the operation but when you do get to it ask loads of questions. My psych said the combination was a new protocol that theoretically works better but that they had not done a heap of trials to see whether patients could tolerate it. I sure couldn't. It all depends on how you go with the radiation.
Talk to the radiation nurses and doctors and tell them everything and they will assess.
Good luck. Hope this helps. If you need to talk send me a message.
Ally
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March 2011
Hi,
The fatigue is so my 'new normal' as are the joint aches and pains. I too found this site by accident after I finished all my treatments. I wonder why nobody told me about it - especially my psych who encourages me to talk to other people?!
Good luck, have a great trip and worry later. Yes it is possible to put the worry off I did it at Christmas- went away and had the best one ever.
Ally
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March 2011
Di,
Glad to hear you're going to 'cool off'. In response to how long the chemo brain lasts, I've been reliably informed by my chemotherapist that unlike 'pregnancy brain' it is real and will last for about 2 years! Mind you that is the response to most of my questions. How long will my joints ache? About 2 years. How long will my ear ring for? Yep 2 years. She had better be right!!!!!
Ally
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March 2011
Oh And PS went to the chemotherapist today for the check-up. She said the lump was nothing to worry about.
Ally
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March 2011
Thanks,
I thought I was the only one and that my blog had been taken off because I had said something that was offensive. Phew!
Ally :)
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March 2011
Hi,
I've finished treatment and feel like I've been spat out the other end and I don't exactly know what to do or how to start picking up the pieces.
I work and a come home and that's the extent of my life, that I fought so hard for, because i'm too tired to do anything else. My brain feels like swiss cheese, and what i can manage to keep in it is confused. I ache all the time and yet i'm told i'm better. I don't know what my body is telling me anymore. The what ifs are driving me crazy and the friends I have left don't understand. My psych tells me I need to work on my general pissed-off-ed-ness and that pissed me off! Not only now do I not trust my body I don't trust my emotions either. I keep asking people if I'm allowed to feel angry when something happens that annoys me. I feel stupid doing it and I don't know what to do.
Any ideas?
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