About exhausted

exhausted

I have been warned by the palliative care nurses we are in our last weeks and while it seems unbelievable while he sits in his chair and laughs at Mrs Browns Boys it is equally believable when he can't get up and go anywhere without a lot of assistance. 3 dear friends on this site have lost their loved ones to this beast in recent weeks and now it appears it will soon be my turn. I feel like I am drowning in sadness as he finally is coming to realise how things really are and our 14 year old son is downstairs in his bed crying his eyes out because of some small ridiculous run in with his mother when really he wants to scream at the world and God it's not fair, DON'T TAKE MY DAD! How inadequate I feel right now unable to really ease anyones pain, let alone my own.

exhausted

Have messaged you.

exhausted

😞

exhausted

Oh goodness this will soon be me!

exhausted

Hi Nat Happy Birthday, I know EXACTLY how you feel as my birthday is the day before yours !!!! and it was also forgotten. I had hoped for a special pressy to mark this day as we know it is my last birthday with him here and today is our wedding anniversary, 17 years, that was forgotten also. Very painful but I have decided not to be upset about it as the only one that will suffer from that is me. Life is so tough at the moment I often find myself living from minute to minute. Sorry somehow that became all about me. I truly understand how you feel.

exhausted

Hi Nat Have you been to centrlink, you should be entitled to a carers pension and he to a disabled pension. My partner and I were able to claim this from the very start as he is not able to be on his own and it sounds like you guys are in a similar position it is not a fortune but managable. Terese.

exhausted

Oh dear Nat, you sound so exhausted, the road is tough. I do understand as your story is similar to mine. The denial of reality is unbeleivable and unfair on us but there is no way to change the path they choose for themselves. All you can do is live one day at a time and look after yourself as well. But in saying that I beleive it is reasonable to demand support for yourself regardless of his opposition. Get in touch with palliative care, the nurses are amazing and I have found that my partner is far more willing to hear the reality from them than me. GBM is a relentless march toward the inevitable I think, and living with the reality of it, I for one am sick to death of hearing the hope message, I'm at the point where I just want to face the reality with patience and compassion for him and me. Hugs Terese.

exhausted

Hi Anne-marie my husband Stuart was dx Sept 2010, doesn't that seem like a life time ago? We are on the last leg of his journey with progression of inoperable tumour, no more treatment now. We are both at peace with that but it is still so tough. Look after yourself, you will both be in my prayers. xox Terese.

exhausted

Hi Geoff Heart goes out to you, my husband is just a few paces behind. His tumour is on the move and no more can be done. The wait at times seems so awful I wish it was over but then I realise that means he will be gone. Difficult painful times. Look after yourself. Terese.

exhausted

Hey Maz That is so exciting, enjoy every minute. Lovely to read some good news on here. Cheers Terese.

Relentless misery....GBM

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