How is everyone going guys? I am feeling pretty good latley. I have another MRI in 2 weeks!! I have them every 3 months, it feels like thats how i live my life. In spans of 3 months... It gets hard sometimes, i try and stay positive. ... View more

Kate, Im so sorry to hear you are going through this as well. Is your husband doing ok. What has made him have 3 surgerys? regrowth? I hope you are ok. Dont be affraid to seek help if you need it. Counciling has really helped my husband, whom is great support for me. Peanutz, I had my first surgery on the 24th of june and my second 3 months latter on the 1st of september. I have been told it doesnt matter how many are done, so long as the patient is well enough? not sure on that though. How is he doing? ... View more

Hi Guys, so sorry to hear about both of your husbands. I know in my experince its sometimes alot harder for the carer than the patient. My husband looks after me and does it well, but i know it affects him greatly. I have 2 young boys, 3 and 1. So life is quite busy and hectic. I love it that way although my energy levels are not so good, so i get tired easily. Terese, may i ask where your husbands tumor is? The reason i do ask, is because in my case i had my first operation done and they did not take out all of my tumor. They said it was to close to my speech and to dangerous. After my 6 weeks of radiation, i decided to go see Dr Charlie Teo, for a second opion. Within 2 days i was having another operation, in which Dr Teo removed all of my tumor without affecting me at all. I struggle somedays with having this diease, i try and remain positve for my family and just pray they find something (CURE EVEN) In the time i have left. 🙂 ... View more

Hi, My name is Cathy. I am 29 and was diagnosed with GBM4 12months ago. Since than i have had 2 surgerys and 6 weeks of radiotherpy and 6 months of chemo. I understand your worry with your son and i understand you are trying to stay realistic. I to think ill be here when i am 60. I have a very positive attitude on my prognosis. It helps me get through all the terrible things that this disease causes and keeps me going. Even if thats not what happens, i think thinking postive is what helps survive longer :) Hope he is doing well. would love to chat ::)) ... View more

I have recently been diagonsed (30th june 2011) I am a 28 year old female. News has been very confronting and so has the information I have read. I have recently undergone surgery (24th june 2011) which all my tumor was unable to be removed due to where some of it was (on my speech) Frontal lobe. Path results confirmed GBM . About to start my treatment plan, amm very intresed in discussing this with someone, also does anyone know of support groups for this brain tumor anywhere near the RPAH in Sydney? ... View more