Hi I have had it reoccur about 9 times. I had my first chemo treatment in 2006 and was clear for 4 years until april this year. I live in adelaide. I don't think the hospital is being truthful with my complications. I had been fighting it for 5 years before they even considered chemo, now it has been 10 years they are considering taking my bladder, but I really don't want that yet.
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I was 31 years old when diagnosed with bladder cancer, I am now 41 and still have re occurences. I am one of the lucky ones where it hasn't spread anywhere, They call it TCC grade 1 cancer. My last surgery was on the 8th April 2011, I also had 1 installation of mitomycin c which my bladder took a turn for the worse. I was in agony for 3 months on the loo every 5 - 10 minutes voiding about 30- 50 mls. Although I am slowly getting better the doctors cancelled my chemo treatments and said I can't have the mitomycin c again. This now gives me know choice if it returns to have my bladder removed. They tell me lots of things, the bladder ulcerated, my ct scan shows cystitis, I was put under on the 1st July 2011 to have a cystoscopy, although I have to wait 1 month for a post op for results, my discharge letter states scarred bladder and low capacity. I don't seem to be getting any answers from the hospital about my complications at all. I have had the run around for 10 years, I just wish they would tell me the truth....
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.