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jodieann
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since July 2011
November 2016
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Re: bladder cancer

by in Living with cancer
July 2011
July 2011
Hi I have had it reoccur about 9 times. I had my first chemo treatment in 2006 and was clear for 4 years until april this year. I live in adelaide. I don't think the hospital is being truthful with my complications. I had been fighting it for 5 years before they even considered chemo, now it has been 10 years they are considering taking my bladder, but I really don't want that yet. ... View more

bladder cancer

by in Living with cancer
July 2011
July 2011
I was 31 years old when diagnosed with bladder cancer, I am now 41 and still have re occurences. I am one of the lucky ones where it hasn't spread anywhere, They call it TCC grade 1 cancer. My last surgery was on the 8th April 2011, I also had 1 installation of mitomycin c which my bladder took a turn for the worse. I was in agony for 3 months on the loo every 5 - 10 minutes voiding about 30- 50 mls. Although I am slowly getting better the doctors cancelled my chemo treatments and said I can't have the mitomycin c again. This now gives me know choice if it returns to have my bladder removed. They tell me lots of things, the bladder ulcerated, my ct scan shows cystitis, I was put under on the 1st July 2011 to have a cystoscopy, although I have to wait 1 month for a post op for results, my discharge letter states scarred bladder and low capacity. I don't seem to be getting any answers from the hospital about my complications at all. I have had the run around for 10 years, I just wish they would tell me the truth.... ... View more
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