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since February 2012
November 2016
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New to this site

by in Blogs
February 2012
February 2012
I'm new to this site and having trouble navigating, I accidently posted the previous about me when trying to reply to another persons question regarding Phantom Leg Pain. I had a renal tumor removed 18 months ago (without Chemo), during a biopsy a tumor was removed from my omentum and it was diagnosed as secondary cancer of the omentum and possible Ovarian cancer plus a large Thymus Gland(not related to the renal cancer) my sugeon wanted to carry out debulking surgery next week followed by chemo 3/4 weeks later. I panicked and scheduled it for 9th March as I need time to accept this diagnosis. I had a colonoscopy and endoscopy this week which came up clear and an internal ultrasound and CA125 test that all came up clear but they are still treating me as though I have ovarian cancer, they said it is probably a false negative. I asked for a PET scan before they start debulking but they don't want me to have one until after the surgery. I can't accept this diagnosis or allow them to do any surgery until I have proof the cancer still exists i.e. a posative test. Also...they won't deal with the Thymus gland until after the Chemo???? what's going on??? Does anyone have any answers/info on this?? ... View more

Re: Phamtom Limb Pain

by in Diagnosis and treatment
February 2012
February 2012
Hi Lioness, I had been suffering from a non specific debilitating pain for 22 years, I was taking Naproxyn twice a day for 20 of those years as it was the only way I could get through the day. After being diagnosed with renal cancer I had to undergo a partial nepherectomy 18 months ago...before putting me out they asked me if I wanted to try a drug called Pregabalin that resets the pain recepters in the brain as they had very good results with patients who had been experiencing phantom leg pain. Sceptical I agreed to try the drug, i was given a dose during the op and took 75mg tablets twice a day for 2 months. I have not had the pain since! the drug is expensive (I think it was $80 per script) but if you get a receipt from the pharmasist you can claim some back through your private health insurance if you have it. ... View more
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