May 2012
Oh thank you again, I honestly believe that we have to have the surgery, and the chemo. I have sent a copy of your reply to all my friends and family, and they are also very happy.
I also am taking it one day at a time, and doing everything that I can to get through this. I know it won't be easy, and really can't say I am looking forward to the surgery, but it is necessary to do this to get my life back on track. The cruise will be wonderful, a real celebration of my life back.
I believe that I have a good team behind me, I know the surgeon is doing a few of these surgeries, as each time I have seen him he has either been doing one or just done one. So he is getting in a lot of practice before me. And my oncologist from only the one appointment is very down to earth and honest. My cardiologist has been brilliant too, he did everything during the workup quickly, and if it wasn't for the blockage I would have had the operations by now and into the chemo post operatively. I think it is better this way anyway, and my heart is the best it has been in years. I have a biventricular pacer with an ICD, so my heart is being helped all the time and protected. I couldn't be in a better position to face all this.
Again thank you and I am so pleased that you are back on track. I too have had the 'poor buggar me' times, but like this occasion, I have found hope. You have given me a new lease on this, and I am really facing this treatment positively. My best friend also said that if I get down during the treatment she will just say to me, Think of Kasianne, and I am sure to pick myself up just thinking about your success.
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May 2012
Kasianne, I can't thank you enough for your response. It is so wonderful to hear from someone who has been through this and emerged so well. I am secretly smiling with a satisfied grin, I am still able to eat, so I am starting in a better position than you. Go me. lol
I have been told I will be in hospital for 2 weeks only, and then they are talking about another 9 weeks of chemo after that. They say they are attacking this aggressively, (with regard to the radiation as well) but I really am prepared for this, and I will cope if I know they are doing everything to get rid of it.
I am so encouraged by your success story, to be eating normally even before you hair has grown back, is remarkable. You have really given me hope.
I can't explain to you how wonderful your response to me is. I have visited the American cancer society forum for Oesophageal cancer and it is all doom and gloom and most of the people on there are either dead or dying. (Their carers are continuing on with the forum)
I must admit that my family will find it good for me to either breath or talk, they will get a bit of 'respite'.
Oh thank you, thank you, thank you. I am sharing this with my family and friends, it is wonderful to hear a success story.
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May 2012
I have been diagnosed with adenocarcinoma of the dura, which is the junction of the oesophagus and the stomach. I was diagnosed on the 30th March, 2012, but it has taken this long to get me to the stage where they can start therapy. Originally they wanted to do the surgery straight away, but during the workup for that they found that I had heart problems. I had a 90% blockage in my coronary artery and a stent was inserted. The heart stuff moved very quickly, but I have had to wait until the stent settled in and I was able to come off blood thinners before I began chemo.
I start Chemo on Thursday, at Bendigo Oncology. I am having two drugs intravenously on Thursday and a PICC line with a continuous infusion put in at the same time. I have continuous infusion of a drug called 5-FU and the other two are Carboplatin and Epirubicin. Every 3 weeks I will have a top up and the bottle and the PICC line will be flushed and changed each week. I am also having radiotherapy during the chemo, and I am being measured up on Tuesday for the guard etc.
At the end of the 9 weeks of chemo/radiation I will have the surgery. Pretty drastic stuff, I am loosing 10cm of my oesophagus and half of my stomach. So I am sort of having a drastic gastric bypass.
Most of this year is written off with this treatment, but I have booked a week long cruise with P&O for January 2013, so I am planning to be healthy for that. A celebration cruise for the end of the major treatment.
I must admit it has taken a lot to get my head around this Cancer, I have had cardiomyopathy/heart disease for the past 11 years, but I am viewing that as just practice for what I am now undertaking. I am taking one day at a time, any other approach just sort of blows my mind, but I am determined that I am going to beat these little cancer cells, and come out the other end.
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May 2012
I am also waiting for my pack to arrive, seems like a good idea and we are helping the future.
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