November 2013
Hi Ibanez_Blazer,
There seem to be a few of you from Melbourne.
You will be able to share your experience with regard to hospitals and specialists.
Best of luck with your Oncologist visit. Keep us posted ;-)
I will have my 2nd CT Scan post surgery (1st Aug) and after nearly 3 months on Glivec in early December. Then meet with my oncologist mid December!
Gabriele
Sydney
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October 2013
Just over 3 weeks on the Glivec (400mg) and so far the side effects are pretty minor.
Main issue is still recovering from the infection I contracted while in hospital having the surgery. Daily nurse still coming to pack and dress 2 wounds that were opened along the surgical scar.
Hope you are all well or as well as can be expected ;-)
Gabriele
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October 2013
Hope you are doing OK on the Glivec.
I have only been on it for just over 2 weeks...I take my 16th tablet (400mg) after dinner tonight.
So far so good with pretty minor side effects.
I am very new to this so there is nothing I can offer in the way of advice. I only know that the Glivec should be shrinking your tumour.
Are you having CT scans every 3 months?
Gabriele
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October 2013
Found you and friend request sent......I am in all the same GIST groups and remember seeing your posts there 🙂
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October 2013
Hi Jade32,
I was also diagnosed around 4 weeks ago. Can you let me know a little more?
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October 2013
Hi Perry,
How do I find you on the GIST Facebook pages? I am also on a few FB GIST groups.
Gabriele
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September 2013
I am wondering if there are people on Cancer Connections with this rare sarcoma ...Gastrointestinal Stromal Tumour (GIST)?
I had surgery on the 1s to August to remove a 24CM tumour and have now started on the Chemo. drug Glivec (imatinib).
From all my online research there would not be too many people with GIST in Australia.
P.S. I am a 7 years survivor of Oral Cancer.
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November 2011
You may find this article on the OCF site interesting. I have been a member for many years using same nick.
http://oralcancernews.org/wp/hpv-vaccine-recommended-for-boys-aged-11-to-12-years/
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August 2011
I think you might find this site useful.
I am also a member of this forum and go under the same name.
Cheers
Gabriele
http://oralcancerfoundation.org/facts/rare/ac/index.htm
http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=133089&Searchpage=1&Main=11951&Words=adenoid&Search=true#Post133089
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March 2009
Hi there, If you go to The Forums section and look under head and neck you will see some of my and Tizz's post's with also a link to a site that will give you whole lot of information. It is worth creating a log on and joining in on the patient forum of the oral cancer foundation. You will also find us there http://www.oralcancerfoundation.org/http://www.oralcancerfoundation.org/ Cheers Gabe
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