Hi Ibanez_Blazer, There seem to be a few of you from Melbourne. You will be able to share your experience with regard to hospitals and specialists. Best of luck with your Oncologist visit. Keep us posted ;-) I will have my 2nd CT Scan post surgery (1st Aug) and after nearly 3 months on Glivec in early December. Then meet with my oncologist mid December! Gabriele Sydney ... View more

Just over 3 weeks on the Glivec (400mg) and so far the side effects are pretty minor. Main issue is still recovering from the infection I contracted while in hospital having the surgery. Daily nurse still coming to pack and dress 2 wounds that were opened along the surgical scar. Hope you are all well or as well as can be expected ;-) Gabriele ... View more

Hope you are doing OK on the Glivec. I have only been on it for just over 2 weeks...I take my 16th tablet (400mg) after dinner tonight. So far so good with pretty minor side effects. I am very new to this so there is nothing I can offer in the way of advice. I only know that the Glivec should be shrinking your tumour. Are you having CT scans every 3 months? Gabriele ... View more

Found you and friend request sent......I am in all the same GIST groups and remember seeing your posts there 🙂 ... View more

Hi Jade32, I was also diagnosed around 4 weeks ago. Can you let me know a little more? ... View more

Hi Perry, How do I find you on the GIST Facebook pages? I am also on a few FB GIST groups. Gabriele ... View more

You may find this article on the OCF site interesting. I have been a member for many years using same nick. http://oralcancernews.org/wp/hpv-vaccine-recommended-for-boys-aged-11-to-12-years/ ... View more

I think you might find this site useful. I am also a member of this forum and go under the same name. Cheers Gabriele http://oralcancerfoundation.org/facts/rare/ac/index.htm http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=133089&Searchpage=1&Main=11951&Words=adenoid&Search=true#Post133089 ... View more

Hi there, If you go to The Forums section and look under head and neck you will see some of my and Tizz's post's with also a link to a site that will give you whole lot of information.  It is worth creating a log on and joining in on the patient forum of the oral cancer foundation.  You will also find us there http://www.oralcancerfoundation.org/http://www.oralcancerfoundation.org/ Cheers Gabe ... View more