Its been a while since ive been on here. I wrote a blog nearly 6months ago now about my partner who had GBM. He turned 25 on July 5th 2012 and we lost him on 15th Aug 2012. Ive never lost anyone so close to me. Everyday i think about him, and wish that he was with us. i go about my daily routine just like normal, but hes always there in the back of my head... Does this get any easier? Our daughter is 4, we celebrated her 4th birthday and our first christmas with her Dad and it has been so hard. I always tell her she can talk about Daddy whenever she wants, but I have found that sometimes she uses him against me. For example, the other day she put toothpaste in her hair and told me "daddy told me to" or when she is in trouble and throwing a dummy spit at me, she turns the cards and gets sad and says she wants daddy - and to me it seems a way to stop me being cranky at her. Has anyone else got young children who are grieving? ... View more

Its been a while since ive been on here. I wrote a blog nearly 6months ago now about my partner who had GBM. He turned 25 on July 5th 2012 and we lost him on 15th Aug 2012. Ive never lost anyone so close to me. Everyday i think about him, and wish that he was with us. i go about my daily routine just like normal, but hes always there in the back of my head... Does this get any easier? Our daughter is 4, we celebrated her 4th birthday and our first christmas with her Dad and it has been so hard. I always tell her she can talk about Daddy whenever she wants, but I have found that sometimes she uses him against me. For example, the other day she put toothpaste in her hair and told me "daddy told me to" or when she is in trouble and throwing a dummy spit at me, she turns the cards and gets sad and says she wants daddy - and to me it seems a way to stop me being cranky at her. Has anyone else got young children who are grieving? ... View more

I'm new to this, but I'm hoping sharing this with other people will help me through my journey as a carer. My partner has a grade 4 brain tumor... Every day it seems though we lose more of him. He is at the point where he is very quiet, he barely talks at all and most of tw time it's just a yea or no response. He's been battling this since 2007, he's only 25yrs old. He's starting to get frequent headaches as well as throwing up most days and sleeping to try and work though the headaches. It's so hard and heartbreaking, he just doesn't seem the same anymore... I spend alot of the time just being strong and acting normal for my family and if Robs not horn with me my phone is glued to my hand waiting for that phone call. Watching him go through this, makes me feel extremely helpless, I wish there was more I could do ... ... View more

I am new to this, but am hoping sharing my story will help me through this a little bit... My partner is 25yrs old... In 07 he was diagnose with grade 2 astrocytoma, he had surgery and the full course of radiation... It was such a shock to learn that your 20yr old bf had a cancer Of this sort, I remember it all like it was yesterday yet at the same time the things the drs said seem like a blur. After that first surgery Rob lost a little part of himself, his tumor was in the left frontal lobe, and his memory started toget affected along with his mood swings. Everything seemed fine after this, we had a baby girl who is now 3 and the whole experience definately made us both grow up alot quicker then any other 20yr old. Last year in Sept the tumor was back, and now a grade 3, he had surgery again and then started a 6mth course of chemo... He lost a bit of himself again after This one. After the chemo finished we went back for an MRI in march this year - the chemo didn't work, the tumor had grown again and was spread more Rapidly... Another surgery left Rob so out of sorts, he just wasn't the same anymore... They offered him radiation again, but he decided against This, he didn't want to spend weeks being sick hen he could spend that Time Home with us. It's been 4/5mths since the last surgery and I can see Rob slowly deteriorating. It breaks my heart to watch someone so full of Life and so young to barely e able to have a conversation. Our daughter tries to talk to him ad play with him, but he just seems uninterested. He has started gettin headaches, and a little more sleepy... He has days where he will eat and days here he won't and days where he just throws up. Everyone around me tells me how strong I am. But I'm struggling to figure out how I tell our daughter this coming to an end... I feel like its getting close now, but then I'm No doctor, I could be wrong... What other signs do i look out for? ... View more