February 2013
Its been a while since ive been on here. I wrote a blog nearly 6months ago now about my partner who had GBM. He turned 25 on July 5th 2012 and we lost him on 15th Aug 2012.
Ive never lost anyone so close to me. Everyday i think about him, and wish that he was with us. i go about my daily routine just like normal, but hes always there in the back of my head...
Does this get any easier?
Our daughter is 4, we celebrated her 4th birthday and our first christmas with her Dad and it has been so hard. I always tell her she can talk about Daddy whenever she wants, but I have found that sometimes she uses him against me. For example, the other day she put toothpaste in her hair and told me "daddy told me to" or when she is in trouble and throwing a dummy spit at me, she turns the cards and gets sad and says she wants daddy - and to me it seems a way to stop me being cranky at her. Has anyone else got young children who are grieving?
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February 2013
Its been a while since ive been on here. I wrote a blog nearly 6months ago now about my partner who had GBM. He turned 25 on July 5th 2012 and we lost him on 15th Aug 2012.
Ive never lost anyone so close to me. Everyday i think about him, and wish that he was with us. i go about my daily routine just like normal, but hes always there in the back of my head...
Does this get any easier?
Our daughter is 4, we celebrated her 4th birthday and our first christmas with her Dad and it has been so hard. I always tell her she can talk about Daddy whenever she wants, but I have found that sometimes she uses him against me. For example, the other day she put toothpaste in her hair and told me "daddy told me to" or when she is in trouble and throwing a dummy spit at me, she turns the cards and gets sad and says she wants daddy - and to me it seems a way to stop me being cranky at her. Has anyone else got young children who are grieving?
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August 2012
I hVe been trying to make the most of things too an have my camera out all the time trying to get family photos... I just can't understand why anyone especially people so young and healthy have to have this horrible disease.
Everyday I have friends and his family telling me how strong I am, and now I'm just sick of hearing it - I know they are only trying to be supportive and probably don't know what else to say, but I don't feel strong, I feel like I'm doing what I have to for the people I love and hat kind o person would I be of I didn't?
Congratulations on your wedding, I think that's lovely and I hope it's a beautiful day for you both xo
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August 2012
Thankyou so much for your reply... I have the understanding that I need to tell er the truth and be honest wih her about what's happening... She has already sensed that something is wrong and is playing the games u mentioned where people die already, and also talks alot about my great grandparents who have passe away. Those games upset me a little bit but as you said that's their way of getting their had around things and dealing with it, and they of course think dry different to us. I don't want to keep her from seeing er Dad but I do want to protect her memory of him a little bit, I would hate for her to be older and say all she remembers of him is him laying in bed sick all the time...
It's very horrible thing to go through and I wouldn't wish it upon anyone else in the world...
Thankyou again for ur reply, and I will probably message u soon x
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August 2012
Hi Rita,
From what I have seen everyone responds differently when under treatment... It is more likely I believe that she will stay the same or get more sick, it might die down a little bit later in the week but when she has the dose again she may feel sick again. Like I said though everyone is different and their bodies react differently.
While mums been on Chemo she has small meals more regularly rather then large meals... I'm not sure what exactly u could try and feed her but light meals with some natural sugar for some energy is probably a good idea... Just like you would of u had a stomach bug... Also lots of leafy greens and vegies is the best for the body.
This is just from what ive seen from my family's experience, I'm sure there are other things you could try.
Best wishes, and be strong - if she can't ask the questions it's good that you do.
xo
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August 2012
Thankyou Pamela, I will have a look at those sites... Am going to have to start preparing her for what's to come sooner rather then later I think .
Rita, it's very hard to watch people go through this... My Mum also has breast cancer and is just coming to the end of her chemo, and will then be starting radiation treatment - she is actualy doing very well with it but it does tear at me to see all her beautiful hair gone... Although then I look at how Robs cancer has turned out and think I would much rather mum lose her hair then be fighting a downward battle like rob.
Life is extremely unfair sometimes. I'm finding it hard to see how everything could possibly happen for a reason when someone so young has to be struck with an incurable cancer.
The other day my daughter was planning her 4th bday party (3 months in advance) and my heart stopped when she was excited saying Daddy would be there.... In Reality he probably won't be.
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August 2012
Thankyou both... I do have alot of family and friends to support us all... although every now and then im worried I might sound like a broken record... and now that he is starting to deteriorate and things are only looking like getting worse it is all becoming alot more real.
i guess i just hope this can be a bit of an outlet for me, i notice a few people on here going through similar situations and they are constantly posting and getting feedback etc...
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August 2012
I'm new to this, but I'm hoping sharing this with other people will help me through my journey as a carer.
My partner has a grade 4 brain tumor... Every day it seems though we lose more of him. He is at the point where he is very quiet, he barely talks at all and most of tw time it's just a yea or no response. He's been battling this since 2007, he's only 25yrs old. He's starting to get frequent headaches as well as throwing up most days and sleeping to try and work though the headaches.
It's so hard and heartbreaking, he just doesn't seem the same anymore... I spend alot of the time just being strong and acting normal for my family and if Robs not horn with me my phone is glued to my hand waiting for that phone call.
Watching him go through this, makes me feel extremely helpless, I wish there was more I could do
...
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August 2012
I am new to this, but am hoping sharing my story will help me through this a little bit...
My partner is 25yrs old... In 07 he was diagnose with grade 2 astrocytoma, he had surgery and the full course of radiation... It was such a shock to learn that your 20yr old bf had a cancer Of this sort, I remember it all like it was yesterday yet at the same time the things the drs said seem like a blur. After that first surgery Rob lost a little part of himself, his tumor was in the left frontal lobe, and his memory started toget affected along with his mood swings. Everything seemed fine after this, we had a baby girl who is now 3 and the whole experience definately made us both grow up alot quicker then any other 20yr old.
Last year in Sept the tumor was back, and now a grade 3, he had surgery again and then started a 6mth course of chemo... He lost a bit of himself again after This one. After the chemo finished we went back for an MRI in march this year - the chemo didn't work, the tumor had grown again and was spread more Rapidly... Another surgery left Rob so out of sorts, he just wasn't the same anymore... They offered him radiation again, but he decided against
This, he didn't want to spend weeks being sick hen he could spend that
Time Home with us. It's been 4/5mths since the last surgery and I can see
Rob slowly deteriorating. It breaks my heart to watch someone so full of
Life and so young to barely e able to have a conversation.
Our daughter tries to talk to him ad play with him, but he just seems uninterested. He has started gettin headaches, and a little more sleepy... He has days where he will eat and days here he won't and days where he just throws up.
Everyone around me tells me how strong I am. But I'm struggling to figure out how I tell our daughter this coming to an end... I feel like its getting close now, but then I'm
No doctor, I could be wrong... What other signs do i look out for?
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