Hi Nic I don't think this is the easiest website to negotiate, and I thought that perhaps this was because I am an ancient parent! Apparently not so. However - I am sorry to hear of your father's illness, and can appreciate the difficulties in planning such an occasion. Both my husband and I have cancer, and are looking forward to family visiting from the UK - but when would be the best time? I am rather an impulsive person and I would suggest getting married as soon as possible, fitting round your father's treatment. Then go ahead as planned in April in Las Vegas - 2 Weddings. Your Dad will then know he has seen you 'tie the knot' officially, and hopefully be able to join in the later celebrations. I do wish you and your family well. The important thing is for you to keep strong and positive - for your own sake as well as your Dads. I am happy to 'talk'any time. Rosey. ... View more

Hello Elaine - Good luck with the treatment. You will know there are many of us thinking of you and wishing you well. Rosey ... View more

Hi Julie I am 67 years old, with grown up children and grandchildren. I know of two other people through this website who had Appendiceal cancer, who are several years younger, but that's all. I don't think there is any particular age, for this cancer, and I expect you already know that it can affect men as well as women. I also have been told that it is slow growing. After my previous surgery, at the Mater when they found it not to be of ovarian origin, they informed me that they thought they had "got it all ". They had removed appendix, ovaries, phallopian tubes, right hemi-colectomy and something else that I have forgotten! I had already had a hysterectomy some years ago. However, when the pathology reported it as being of appendix origin, they referred me on to the P A Hospital's colorectal department as this was 'beyond their (the Mater) expertise '. Further scans then did reveal residual pockets of cancer cells, which is the reason for me waiting for further surgery. I have not had any chemo to date, as I understand that intravenous chemo is not beneficial for this cancer. However, when I eventually do have another operation I am expecting that whilst I am still under the anaesthetic I will have heated chemo put directly into my pelvic area. (Look up Sugarbaker technique). Which sounds delightful, but seems to be the way to go with this (and other) cancers.!!! I am glad they will be continuing to monitor your situation - did you manage to find more information on the 'net'? Yes it is very difficult not being able to discuss this with others in a similar position, being as it is unusual. Even my daughter - who is a nurse - had never heard of this. We are all much more knowledgable now!!! Best Regards - Rosemary ... View more

Hi Julie I have appendix cancer. I had surgery in September 2012 for suspected ovarian cancer, when this was discovered. I was then referred on to P.A.Hospital Brisbane, (one of only 2 hospitals in Australia specialising in this cancer) and have been on a waiting list there since January, for further surgery. I live in North Queensland. There is a lot of information on the Internet (no Australian sites!)but if you Google Appendix Cancer, you will find some English ones and many American ones. I understand that it is a rare cancer - my own GP had never heard of it. I am happy to chat to you about it. How was this diagnosed for you? Rosey ... View more

Just shows what happens when you persevere - glad for you - and not too long to wait now. Rosey x ... View more

So glad for you. x ... View more

Hi - had my review at PAH on Monday. Recent scans show no change so am booked to see them again in December. Am still on waiting list. Hope you are all ok. ... View more

I am under Nick Lutton and Brian Meade at PAH. Hoping to see Dr Meade next week at my review. Originally referred to them last October, and put on waiting list for surgery last January. Hoping for some answers soon! ... View more

Well - I am still waiting for surgery. Admitted to waiting list in January. I am due at the PA Brisbane on 24th June for a review. Then what, I wonder. Originally told it could be midyear but nothing so far. Waiting, waiting....... One good thing - my husband has completed his chemo (for Non-Hodgkins Lymphoma)and he feels a lot better. Due to see specialist tomorrow - Townsville Haematology. Fingers crossed. ... View more

I am sorry you experienced this feeling of disconnection at your Church. I can empathise with this feeling. It almost seems that once Cancer has touched our lives we are never the same again, although to some people all appears well. Generally people Christian or not, assume that once someone is in remission that's the end of all worry, whereas in actual fact there is new sort of anxiety which continues even though we try to push them aside and concentrate on the "now ". I imagine your minister had to generalise rather than be too specific. I also wonder, if he actually did remember your circumstance he might not have felt comfortable in bringing the subject into his sermon for fear of upsetting you or someone else undergoing similar events. I also think many people are not comfortable talking about Cancer, even though they care about you personally. Which is a great shame as this is the one thing we need to share from time to time - hence this website. I am fortunate in having a good (Church) friend who lost her husband to cancer, so I know that when she asks me or my husband how things are going she really does understand, and acknowledges the different feelings we experience. I do hope you are able to "reconnect" I am more than happy to continue 'talking'with you, and in return would appreciate this contact. xx ... View more