Hi Kiri
Where are you being treated? The oncologist is the person who should be organising your chemo and working alongside your other specialist in order to make sure you are receiving the right treatment. They are the experts on the combinations of drugs for your particular cancer.I had a surgeon, oncologist and dietitians working with me.
It is difficult for people who have not had much experience of cancer or had it themselves to understand your emotions and you have to remember that the comments they make are only them trying to be helpful and supportive throughout your journey. You may not find them beneficial and they may provoke some behaviours you don't understand like throwing out the splenda but hey in this situation you will try anything that may help. They are right their is always someone worse off than ourselves but that does not make our own situation any easier to deal with and another persons battle does not affect how we are coping with the diagnosis.
I never really found any support networks here in Townsville but to be honest did not look very hard, I am very lucky to have a supportive family two daughters, a step son and a wonderful husband who were all there for me and an aunty who helped out a lot with the chemo runs and keeping me entertained whilst everyone else was out at work. I was in very bad shape by the time I was diagnosed as they struggled to find out what was wrong with me as like you I am young to have the cancer I had and also it is not very often found in women so I was a bit of a surprise diagnosis to the doctors as well. The rest of my family is still in the UK where we moved from 3 years ago and they did their bit by phone and skype.
I am not surprised your thoughts are everywhere as you are given loads of information and it becomes hard to process what is happening hence why I always took someone with me to my appointments so they could make sure I had the treatment plan sorted in my head.
Not sure what else I can say but add me as a friend and then I can give you my email address and we could type in real time either on msn or facebook or some other media.
Kasianne
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