People say, 'be strong'. I say, 'be whatever you feel you need to be to get through' . Crying is cathartic. It's an important part of processing what is happening to you. You're in my thoughts Lynne, take care and heal well. Jo ... View more

Lynne my thoughts are with, Do sit back and write your story it will you help so much, all the lovely times you have had together will bring you great joy as you are putting it down. I have found the more I talk about my cancer, takes so much tension off my mind, you would be surprised at the the people who are interested in finding out and how can they diagnose it and hopefully find it in the early stages. good luck, Roy. ... View more

Thank you so much for your comment. I found it really helpful, as you understand as a carer and also as a health professional. The public hospital system, even though there are lots of really caring individuals, is still a system and it wants to roll over people like me. I did have the support, at that planning meeting, of a lovely lady - the pastoral care worker with the palliative care team. She wasn't meant to be at the meeting but I invited her. I thought I had the right. I was determined to stick up for myself and Ray and, even though they tried to steamroll me, I didn't allow it. The oncologist didn't attend, but sent her registrar, who tried to blind me with science - not easy, as I have Degrees in Science myself. I actually pulled him up and asked him to put it in layman's terms, which threw him a bit. After that it was easy, as he was the first one to speak. In the end, I got everything I wanted. Hollow victory, though. Ray's got a temp of 38.9, which means neutropenia, and they're not giving him IV antibiotics, so he's quite ill. On a morphine pump, too. Just a matter of time now. I'm praying that it's quick and easy for Ray's sake. He's suffered enough without the indignity he's going through at the moment. He recognised me today and whispered "I love you", which means a lot. Lynne xxx ... View more

I have no insight for you Lynne just sympathy and support. I hope this is not what my wife has ahead of her if my condition worsens ... I hope you both find the peace you need and deserve ... ... View more