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kiwibud
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March 2009
November 2016
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March 2009
Hi my aussie friends.... I have been so busy with radiation and all the side affects ..... this urinary tract infection just would NOT go away.... Now I'm DONE DONE for 2 whole weeks with no treatments and a big BREAK!!! I have never been so happy in my life. For some reason this radiation really hit me worse than my hard core chemo did for months. I have had more nausea.. bowel problems.... infections ... fevers... etc...... Now that Im done I am just starting to EAT again!!!! I have lost over 30 lbs and need to gain at least 10 back ... Plus Ive had to have that nasty shot for my hemoglobin being too low... that hurt like the DEVIL!!! and i had to have it twice during this whole time of radiation. Today Im just going for hydration and a bag of antibiotics for this UTI to see if we can finally get it OUT of me!! BUT I FEEL so much better and I miss talking to you all!!!! I'm going to Disney next weekend to take my daughter for her 5th birthday. It should be great!!! Write and let me know how everyone is doing ~~~~~~~~~~~~~~~~~~~~ i'M GONNA cook up a storm this weekend.. maybe a big old
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March 2009
hi butterfly... i just figured out how to better navigate and get back to this exact forum spot. Made thanksgiving dinner yesteday and it reall knocked me out on my feet so long. Thanks for your post, I'm doing better everyday.. this was my second surgery in six months and thats why I think this pain level is worse.. Larger Incision this time. I'll be having radiation for approx 6 weeks for 15 minutes a day along with a low dose chemo therapy once a wk. At least I have a few weeks to heal up from surgery before that new treatment begins. my daughter is just beautiful little almost 5 yr old...and she has been my saving grace in this whole thing. Children have a way of making you realize it's the simple things that really matter. We can just lay in bed watching her disney dvd's and have the best of times. I'm hoping I'll still be able to work when this radiation treatment starts. I worked the entire time with my other chemo and that was high dose and made me sick. I'm a pretty determined person and can usually get through rough times. This second hit has kind of taken the wind outta my sails though. Is this forum for people all over... i was looking at the address and it looks like australia. I'm in South Florida so I wonder... I'm happy i found it because I have trouble sleeping and this allows me to do something constructive and feel like i have a network when I'm up. THe dog and hubby are here snoring....must be nice! lol look for your next post... diane
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March 2009
Butterfly, thats so much for your response. what you said is so true... people that are not sick telling you to be positive when i think I'm already pretty positive gets on my nerves. (i have my moments of being angry) BUT it is the truth, most of the time I try to be in a good mood and I did work the entire time thru my treatment. Now though, I'm realizing I'm no where near done like I had planned. Now this is going to be a whole way of life, and I will make adjustments. This type of forum is really good for me beacause it allows me to have other people going thru what I am and know stuff that helps. I want to be that person for someone else. Hopefully, we can chat soon. I havent figured out this forum yet.... I know on HysterSisters they had all kinds of cool stuff and the people there were great. I'm cookin a big old turkey soon, so gobble gobble have a great day! Hauling out the christmas cd's to cook and thank GOD that i can have a mimosa! Hope you're feeling good today too! diane
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March 2009
Hi Ladies, I have not posted as I have been in radiation treatments and have now had 16 of the 25...... Not as bad as the chemo that's for sure but still has it's challenges. I cant wait til I can get a break for my body and not have anything procedural going on. Found that taking my girlfriend to the doctors with me has been a big help because she rememembers things I always forget and there is always a laundry list of stuff. Plus it seems the doctor is paying more attention now that she is asking questions and making sure everything is getting done. Sometimes I amjust too tired and don't feel like dealing with it. It has been great to have this care advocate that can do some of this for me...... I wish that I had allowed this earlier on in the process. I still have so many things but they are getting fixed one at a time.. Mouth Sores.... Fever.... Urinary tract infection... Nausea and throwing up (BEEN CLEAR FOR 3 whole days yeah) that was the worst. of course the diahrrhea from radiation and the sensitivity and sorness on your stomach and internal organs. Now my feet are all swelled up and I have to have some type of lymphoma treatment to get the fluid down which will make me feel better as I'm wearing these silly white stockings you get in the hospital that squeeze your feet and legs so it looks like a sausage. Hope everyone is doing OK and I'd love to know if any of you have had this mouth problem and what you did to fix it... The main thing is my pain management is now much under control with a Fenenal patch. Now I only have to take oral stuff once in a while instead of constantly which helps my poor beat up stomach. WRITE SOON.... miss you all... Diane
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March 2009
hi there... i just now got through a second emergency operation and had gotten thru chemo for abt 6 mos. I have an agressive form /grade of cancer and had a hysterectomy and was hopeful that no cells escaped but was not that lucky ... now im facing a round of radiation along with lose dose chemo for 6 wks once i recover from the emergency surgery where they removed another cancerous tumor. been thru the mill and back and trying to figure out how to get in gear to fight this round. Have a 4 yr old and its really hard emotionally right now. Faced with thoughts of not being around long term and could use someone to talk to.... Im finding this cancer stuff can become a whole new way of life.. I thought i was done and could go back to normal.. there will never be normal gain so i have to figure out what this new thing is going to be. I'm grateful that I'm here for now... and will not become an angry mess. Even though i have those moments. keep up the forum .. people need people to talk to... Diane
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March 2009
Ladies, I have been healing up as I am suppose to have my radiation/chemo combo in the next four weeks. Just been having normal pain from the surgery but tonite I woke up and find that I now have vaginal bleeding. (similar to when you have a period) I had a full hysterectomy back in March and have never had any bleeding at all. Now this second surgery to remove another malignant cyst in November and all of a sudden this bleeding. Nothing scares you more than blood. Can anyone help me and tell me if this has happened and what they did. I will call the dr. first thing in the morning.. but I don't want to over react and go to the emergency room either. Please any help you can give would be appreciated. Diane in Florida
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February 2009
Hi there and just know that since you are here seeking to get help and information shows how much you care. That alone is so important to your partner. My husband is trying so hard and as long as you are loving and dont forget to give out those hugs and kinds words of encouragement. This is a tough time for both of you and your support will make the difference. It sounds like you are truly scared and that is normal. I now try to realize that my husband is probably just as scared as I am but if you hold on to each other , your love and faith will get you through this most difficult time. Each day is so important not to waste the good time.... don't get caught up in the trivial life issues. It's wonderful to have someone to hold onto and give love and show affection during this time. Hang in there and keep your faith and remember the power of love and what it can do. Sending my best to you and your wife..... Diane in Florida
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