Well a fun time was had by all while I was in Brisbane. The weather was a bit crappy when we went to Seaworld but it wasn't pouring down rain just the light miserable stuff just to be annoying. Movieworld the next day was fantastic. Couldn't have had nicer weather. Friday was spent all day at the hospital as another PET scan was ordered. Tumours have grown which is understandable and some more lymph nodes are now affected. We went to Outback Spectacular that night and we all just had a blast. If you ever get a chance to go. Sunday night after we came home I went downhill again in chronic pain. I spent the weekend before we left in hospital with similar pain and all they did was dope me up and sent me home the following day with nothing. I thought they would have given me a script for some painkillers. I put up with the pain on Sunday night and cried myself to sleep.my husband phoned the cancer care nurse on Monday as this stage of my illness is all new to us as previously you wouldn't have known I was sick. She was lovely and got us in touch with the Pallative care nurse who got us on the straight and narrow and knew exactly what was causing my pain. In the meantime I had my doctors surgery nurse come to the house and I haas given a very strong injection of morphine. Well a zombie I was for the rest of the day. When we found out that that I didn't need the morphine all I needed was steroid tablets it was a relief. Today I should be painfree and I was even driving my car yesterday. The radiotherapy shots worked on my hip and I might even be able to dance tomorrow night at my Hippy Birthday party. Preparations have been much easier as I feel like I'm back to normal again. My heart does go out to a very dear friend of mine at the moment though as she lost her dear husband on Monday from Pancreatic cancer which he has battled the last couple of years. Well must go and get the kids organised as life goes on today. ... View more

Well, we've had more news today, which makes me glad I didn't tell the kids or my husband, who had a scan two weeks ago. I was told that the tumour had almost doubled in size, today they are saying that it hasn't, what they thought was growth was just swelling from the radiation. ... View more

Hi hope all goes well for you in the future, and wish you all the luck in the world, what hospital are you under?, and what part of Australia do you live in?, i live in Bendigo Vic. and travel to melb. every visit hope to be transfered to the hosp. here soon. regards peter. ... View more

Hi Merkel, Mine started on the right side of my scalp. It attached itself to a lump which I had on my scalp for over 12 years which had been tested and was only a lump of fat cells so when it got to the stage I couldn't even sleep on that side I went to the doctor and said I wanted the lump removed. They sent me for an ultrasound and not knowing that it was Merkel removed it without clear margins. I'm being treated at the Royal Brisbane. They are all great but I just hate the waiting. I can phone them at anytime though and if I start to have symptoms which I don't think are normal I can go to my own Dr and he can arrange a ct scan, which I think I might do today as I am having blood in my phlegm in the morning which doesn't normally happen to me. I have a permanent strip of hairless on my scalp which I joke about with the kids. I joke a lot just to keep me sane. My husband said he would prefer me to have no hair and have me alive. He is just wonderful. Mrs Murt ... View more