Hi - I saw your post when I first started looking on this site, and to be honest I had some negative thoughts about the fact that the only thing you were struggling with was the physical side of the relationship. I just wanted to say that I get it now. My husband has a brain tumour and although I struggle with a lot of it, I really didn't want to give up until he started to lose his cognitive awareness, because with this went the fact he is my husband and I am more than just his carer. So, sorry I judged. It's a huge loss when that part of the relationship goes. I hope things are going as well as they can for you and your family. I've got nothing in terms of suggestions, except to say that I can almost pretend things are okay when we spoon in bed at night.
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