Hi Jen,
Yes, I've had a positive couple of days. Been focused on the wedding. 🙂 I'm going to need to plan something else big for when it is over to keep me sane!!
I am actually quite looking forward to the forum. I'm not sure how Mum heard of it, or I'd forward her source. She said that they have them for all kinds of different cancer. Hers is secondary breast cancer. I think she received it via email from a cancer charity that she has contacted, Bloomhill Cancer Care.
Do they have them in Brisbane? If not, they are up here on the Sunshine Coast, and Mum said they are really valuable. Perhaps they may benefit you too? They offer chances to relax and get away for patients and carers (family etc.), information, counseling and advice etc. Mum is forwarding me to them for further counseling. She said they are great because all of the staff there are former oncology nurses/medical professionals, so are apparently much more informative than a lot of the doctors and nurses at the hospitals.
That's ridiculous. They don't seem to understand how horrible it is as patients and family to have to sit and wait for them to get it together. I hope that you find a great neurologist and best of luck with the oncology appointment. Chemo is so different person to person, treatment to treatment. Mum was very sick with her first chemo and had it once a month, with her most recent one, she was having chemo weekly but didn't get as sick. She said that radiotherapy wasn't so bad.
You too, 🙂
Thanks,
Krystle.
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