Hi Caroline I had a different cancer. So sorry to hear they took so long to pick this up, glad they finally did & he is getting treatment. Wishing your husband all the best with treatment. Belinda ... View more

Thanks Felix - Wish this was around lost year when I went through treatment. But great to know its there as support for future reference. Thanks for letting me know. ... View more

Thanks Julie. Its been a long road til here. I actually finished a year ago last Saturday doing Radiation treatment. So its been awhile since treatment, I think the first 6mths recovery was harder with fatigue/pain etc. Now its just a day to day management of the effects. I know I am a lot stronger than last year. I just thought it was weird with my brain fog & having the cramping come on so strong and regular which my GP didn't seem to know much about. I will try your advise on the vitamins. My GP did suggest the Magnesium so I will try the others as well and hopefully that should help. Thanks for your time & help again Julie. Great chatting ! ... View more

Thanks Julie. You know its a nice reflect to hear your experience. I have only just registered and I found my problems are getting more depressing. So I went in search and found this, the only other stuff I have found is info from US but from Australia is so good. I will start with the puzzles & hopefully this happens. I do IT at work and troubleshoot all day so I am using my brain but it feels like I am having to constantly reassure myself that I am doing the right thing. I did see an OT for the lymphodema and try to massage this daily, I also use a compression bandage at night. Just find it hard being up in to tropics the heat was ignoring at night to sleep in it. And I find now its cooled down my face seems to still be an issue. The cramping is something I will have manage. It has only just started to come on constant maybe because of the it cooling down. I know its happening quite alot daily and the cramps last a good 5mins. I ain't take painkillers yet. I have found some sites mention about exercising that area so I will try that. Thanks so much for your help... Great to hear you are all good after 3.5 yrs. Cheers! ... View more

This looks like an old post. But I will try anyway... I had Follicular Dendritic Cell Sarcoma which is fairly rare cancer to the neck. This was removed & followed head & neck radiation treatment. Results are showing I am all clear. Which is fantastic. Just wondering if anyone has experienced cramping & spasms of the neck, Lymphedema of the face & brain fog. Many thanks ... View more