My husband passed away peacefully on Resurrection Sunday 20 April to be with the Lord Jesus Christ. Had a chest infection which quickly developed into pneumonia. The swiftness of the progression stunned us all. We had a wonderful celebration of his life and our children have been brilliant. It will be hard to adjust to life without such a dynamic person. Will miss him terribly and the house is so quiet without him. Farewell. ... View more

CA19-9 now 14000. No decrease at all during chemo. Husband has decided to cease chemo as the last 3 weeks have not been kind. Extreme fatigue, abdominal pain and DVT pain in right calf. Not sleeping very well at all. One benefit - farting has decreased dramatically!! Handing it all over to our Creator and Lord, Jesus Christ. 🙂 Hopefully the effects of chemo will go (if it is the effects of chemo being observed) and there might be some improvement in the short term. ... View more

Just complete 4th treatment of 12 treatment cycle. CA 19-9 result is 9600 😞 Was 1200 at diagnosis (mid Nov), 2062 at post op check up (mid Jan) and 6050 2 weeks ago (10 March) 😞 Not sure what is going on but as the tumour was inoperative and has metastisized... does this mean the chemo is having no effect? Two gastric bypasses performed instead of a Whipple. Husband coping with chemo pretty well and as we are keeping a diary it helps to know what is ahead over the 2 weeks. Nilstat is keeping oral thrush/white tongue under control but tooth splinters from an extracted tooth before chemo commenced is causing problems. Thought it was an ulcer but the splinters keeping popping through the gum! The other major problem is foul farting! "chemo farts" about 7/8 days into the cycle and lasting about 3-4 days with quite severe stomach cramps at times. No other pain really. Weight is very stable. Fatigue usually happens 5/6 days into cycle and lasts about 4 days.Can be good, bad or just plain ugly! ... View more

My husband was diagnosied in mid November with small bowel/duodenal cancer (poorly differentiated) which has infiltrated into head of pancreas also. Whipple was to be undertaken 9 Dec but laparoscope revealed metastises to retroperiteneal tissue and a couple of spots to outside of stomach lining so 2 gastric bypasses performed as palliative treatment. Now on 2nd cycle of chemo (of 12 planned). Oxaliplatin/Leucovorin by IV and then Fluorouracil for 2 days by pump at home. We both have a very deep Christian faith in the Lord Jesus Christ which gives us great comfort but of course we experience all the highs and lows that go with this disease. As carer for my husband who I love dearly I would really appreciate any advice/suggestions for dealing with the effects of chemo - especially mouth ulcers and mouth sensitivity.. I am thankful for forums like this where people share their experiences and encouragement 🙂 ... View more