December 2013
Oh GOD Nat GRRRR sooo sorry for you and your Family.
When and if you feel you want to Maybe even a private email.
What kind of signs and changes did you notice in your Dear Late Mother
as she fought?
I am just so LOST as to know how or what to look for
we had so many plans and things we had to do
And so far i am yet to fond anyone that can guide me in that Way!
GOD I do hope this does not sound Pathetic
or way out of line But If anything at all KNOW
that it offers US some kind of chance to adjust and be dare I say more prepared?
THANK YOU Soooooooooooo MUCH for replying
Also If I may Ask How old was Your Mother?
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December 2013
Hi Julie, I am a tad Naive lol..I am not quite sure what you mean by telling me that post was 2010?
Am I to assume they Lost their Fight?
Sorry but your reply has confused me
I had a reply from someone who has not replied in over a year
so I just assumed it was ok to reply!
This form of Cancer is rare in so many blogs and forums
etc. that Any chance of some communication with those in the same position was worth a try
Sorry if i may be out of line
I am ANGRY(NOT At YOU though :)) I am LOST I am Confused :(
Thank though for the recommendation and shall look into it 🙂
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December 2013
Hi Mirkir, So So Sorry, My Heart Sincerely goes out to you!
I am told Seeing Karen So well I mean She looks normal etc. Acts Normal, But Here is this Thing this UGLY HORRIBLE THING inside her, Add to this the surgery scaring inside and out,Some Pain And Slight differences Temperature control is a huge issue, Nausia,tummy pain,Aches More than usual Etc.
And I can Only assume was and is the same for so many?
There are days I just can not Fathom what I hear or see regarding this type of cancer!
And Yes the Children even though mine are older and independent
they are like me We are simply making the most of it
We just celebrated Karen's 50th had a huge Party Close friends and Family, All of a sudden the garden and house work just seems so irrelevant. and we tend to go out more for Lunch etc.
I can not imagine life with out her,or the 33 years together Now having a Stupid TIME limit put on it Sigh!
GOD I just can not Fathom The next year Sigh!
We keep positive,We hang on to Hope After all these silly 2% and 5% survival rate things Well someone has to make that % up right?
And we have the fact Karen is yet another Unique individual as was your Wife or Jane Smith down the rod like!
THANK YOU so Much for coming back and writing on here for ME
for US,for EVERYONE Mirkir :)
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December 2013
Hi All,
Look I apologize for this blog post. WHY? Well it seems Wrong of me asking But then I am told its NOT wrong,SIGH!
So I give it a go.............
i hunted all round for something relating to it and Just no luck!
Basically.... Relating to "GALLBLADDER,LIVER and BILE DUCT CANCER"
My Wife 50,
Gallbladder was removed and Cancer Diagnosed October 2013
Bile duct reconstruction performed But No Liver Section done As the Cancer had spread and was to difficult to do.
No Radiation at present because several Lymph glands further away from the Liver where ENLARGED on the CAT SCAN!
And Radiation is for a controlled area
Hence Chemotherapy only option for NOW. Hopefully reducing the Nodes and bumping them Off.
She has had 2 causes so far
All and all doing rather Well
Very Pale and a low Hemoglobin
My question IS.....
Every one is unique in there Treatments to a point And
there own structure and yes every Cancer therefor is unique
DOES Anyone out there Or HAS anyone been through this or knows someone close that has Pretty close to the Above? and if SO!
WHAT Are the signs Should A Sufferer deteriorating
Be showing,
Granted The Nurses in ONCOLOGY and the Local GP and ONCOLOGIST Should know IF a person is degrading or Not reacting etc.
But So far I have found Most Professionals VAGUE
and at times DARE I say talk almost as if "Well here is another one"
I am just Interested to Hear from anyone that may Know
something anything to HELP!
I am Sure Many have thought of this Question surely?
Or am I out of line Sigh?
Oh Sorry My Wife also suffers from "ME" ( Myalgic encephalomyalitis),has Diabetes,Arrhythmia,And 2 degenerated disk in her lower back
So as you can see She already sleeps SOOOOOOO MUCH! Was always itchy,suffered head aches,flu like symptoms ongoing. And bad back,and joints etc. All since 2005'
THANK YOU for reading
Cheers
Peter
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December 2013
Hi Lou lou,WOW.
Well I see at least some other going through very similar Ordeals as US! But surprised at the great fact That At least people are getting the FULL Surgery and nodes removed etc.
I am so confused on This Cancer As well as wishing to know WHAT to expect Long term My Wife was given 12 months WITH treatment so Reading your post and Dates was seriously ENCOURAGING 🙂 Thank You!
I would SO LOVE it if at all Possible You can write again soon and sloe tell US how Things are going.
Karen ( My Wife) Also Had several key hole Operations
She healed well, And the Major Surgery only included a resection of the Bile Duct.They never went further 😞 All we can Hope as I said Below is They KNOW What there doing!
I just posted this in another Post earlier.......>
Sorry to read your ordeal Above.
My Wife has stage 4 But they found it AFTER removing her GallBladder
She also went in for the MAJOR operation you discribed But stopped half way When it was found in Bladder and Lymph node
She has started Chemo and has just finished her second dosage
Sadly no Radiation will be done for Her unless the other Lymph nodes found on the CAT SCAN can be reduced completely Sad
This is a very AGGRESSIVE Cancer
And Although spirits are High and She is doing extremely Well!
She will be having Chemotherapy for at least 6 months Sad
I hate watching her go through all this As you will understand
You HOPE and Rely in the Professionals that they got it all right!
And I can so Relate to the comment YOU made Regarding Doctors Vagueness!
PLEASE can you write again SOON and let us know just how things are going for you there. As so little is known or even documents on this form of CANCER!
Cheers Peter
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December 2013
Hi Natpat,
Sorry to read your ordeal Above.
My Wife has stage 4 But they found it AFTER removing her GallBladder
She also went in for the MAJOR operation you discribed But stopped half way When it was found in Bladder and Lymph node
She has started Chemo and has just finished her second dosage
Sadly no Radiation will be done for Her unless the other Lymph nodes found on the CAT SCAN can be reduced completely :(
This is a very AGGRESSIVE Cancer
And Although spirits are High and She is doing extremely Well!
She will be having Chemotherapy for at least 6 months :(
I hate watching her go through all this As you will understand
You HOPE and Rely in the Professionals that they got it all right!
And I can so Relate to the comment YOU made Regarding Doctors Vagueness!
PLEASE can you write again SOON and let us know just how things are going for you there. As so little is known or even documents on this form of CANCER!
Cheers Peter
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