Hi Wysewun,
Here's a couple of suggestions for places to go on the internet where there are others who may have similar experiences:
Go to the vast community forums at www.hystersisters.com and find a suitable forum to post your message there. When I checked on 12th February 2014 the overall stats for their forums were threads..514,381 posts..4,213,992 members..325,109 !
There are links to some lymphedema forums (discussion boards) on the web page http://bestcancersites.com/lymphedema/
I hope the pain subsides soon 🙂
Cheers - Ed.
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