So I've had my surgeries, radioactive iodine treatment, first little followup appointment with the endocrinologist, and now have to wait for the full 6 months after treatment before I can have the blood tests done to see if it has re appeared. While I have been given the 'all clear' from the scans in April, the problem is that my Hurthle Cell Cancer likes to travel, and there is no 'marker' in your blood to tell you if it has traveled anywhere. All they can test for is the thyroglobulin levels in your body to be low to help prevent it reappearing. It also does not appear in the lymph nodes, so I do not know what happens. I do believe that is is not in my system, but like anything there is still an element of doubt and fear. While I do not dwell on this too much and live my life fully (still very tired and adjusting to medication) it is in the back of my mind. It was a fluke finding the first lump so if there was to be another one somewhere else, how on earth would i find it! I am not a small person and we have lumps everywhere in our bodies...lol... Anyhow I am writing to offload some thoughts. I am privileged to be in such good health when many people around me are doing it hard with regards to their treatments. But every journey is different. Feelings and symptoms are just as real for one person as to another and we do need to listen. May I encourage everyone to take it a day at a time, moment by moment, and look for the little things to make you happy and encourage you in your journey through this stage of your life. God Bless Christine ... View more

So further to everything I have had the radioactive iodine treatment which is recommended for thyroid cancers even though mine is a rare cancer. All went well and according to the scans the cancer had not spread anywhere else at this stage which is great. I am currently looking for another Dr to look after me as I have moved interstate throughout this process. This is quite a stressful situation as I now have to find someone else to trust with my care. But always optimistic...I know things will work out. Happy to chat. ... View more