Thank you so much for your reply and the helpful suggestions, and I am sorry to hear of a life lost so young... I will definitely take your comments on board and try to make sure that my husband does stuff to help his emotional wellbeing during this time too. I will have radiation therapy in August and I believe I will have to wait at least a year to start trying for a family, it is still my biggest concern and while the Drs have said it should be ok I think I might go see a fertility specialist anyway. I have had a bad run of health issues and want a specialists opinion to make sure we have the best chance of still having a family.
Everyone seems to be trying to protect me by not talking about my diagnosis, or how they feel, but I am coping very well (far better than I would have expected) and I just need them to open up a bit more, but at the same time don't want to make them feel that they are dealing with it incorrectly as there isn't a right way... Communication is so important to me and I am finding that hard. I have people in my life bottling up their emotions and then having mini emotional breakdowns, (not anger as you experienced with your husband) but I just want to help them deal with these intense emotions.
Thank you again for your advice and for being a sympathetic ear, it does help to verbalise all of this, and it means a lot to have this support available, so thank you for being here 🙂
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A year ago I injured my spine, and have recently had disc replacement surgery. As a result of some complications I had some scans which lead to further testing and I was diagnosed with a rare type of thyroid cancer last Thursday. While I am still coming to terms with my diagnosis and impact on my future, one of my biggest concerns is helping my parents and my husband cope, after what has already been a very trying twelve months. I know everyone deals with things in their own way, and have told them all to communicate their needs with me, but my folks live in the uk, and my husband has never been communicative in emotional things. I am only 29 and we don't have a family yet, and to be honest this is what is causing me the most anxiety.
I am looking for advice on things that make the journey easier for those who care but feel they can't do anything to help, advice on the Diffuse Sclerosis Variant of Thyroid cancer, and the opportunity to support others going through a difficult time with their diagnosis as I have a lot of love and positivity to share.
I wish you all the very best, and have already been inspired by some of the stories I have read here, so thank you all for sharing.
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I am newly diagnosed and have gone through almost exactly the same thing - thyroid is the most treatable so everything will be fine, to yours is a rare more aggressive type of thyroid cancer we have to do lots of tests. I was diagnosed on Thursday last week and yesterday told by the specialist it was more serious. I'd love to talk to you more about the surgery (I'm expecting a complete thyroidectomy and lymph node dissection of everything on the right hand side). If you are happy to talk and share your experiences so far I would love to talk more.
Best of luck with your treatment, and I hope the body scan results were good news.
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Hi, I am 29, female, and newly diagnosed with a rare type of thyroid cancer. I've only known for a few days and so am still trying to come to terms with the impacts. My treatments won't be the same, at the moment only looking at surgery and radiation therapy, but perhaps I could offer an understanding ear? So far I am coping well with my diagnosis and would love to be able to offer support, as while I have had friends go through this previously I have also felt that I wasn't able to truly understand their situation, perhaps now I would be better prepared.
Pop me a pm if you think it is a good idea, and I certainly wouldn't be offended if she has decided this or I am not right for her :)
Wishing her all the best, and hoping you are also looking after yourself while you are taking such selfless action to try help her. I'm sure she appreciates the support you are giving her already.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.