Oh my gosh I'm so sorry to hear you've had a very rough time with it all I'm so glad you are improving , I have been wondering about you a lot and sending positive thoughts your way. I have finished my treatment they decided to cut it back to four. I had a PET and CT last week and the PET scan is normal no light ups, blood tests are also good apart from still not being completely normal due to chemo but getting there. I have another appointment in a few weeks as my doctor said he is discussing what next with surgeon, hopefully they'll sort it out and I'll be able to get back to normal...if there is such thing as normal after this. I wish I could throw some extra kilos your way to help you out but sadly for both of us it's not possible to share extra kilos... I will however keep positive and send love and hugs your way. How are your boys I hope they are okay and they too have the support they need xxxxx ... View more

Hi there I'm glad to read your feeling good, sorry it's been a while since I have been here....my last two treatments felt like I'd not long felt better then I had the next , I spent 3 days in hosp for both treatments but at least I didn't have huge allergic reactions just a little one in which they decided to administer my chemo over 2 days... Different chemo for different cancers I think...I read that I wouldn't lose my hair until after 2nd treatment but I was losing it a few days before exactly 2 weeks.. Good idea going on a holiday after all this is over you really do deserve it!! I'm just looking forward to a few days fresh sea air and a day or two out on the boat fishing with my dad and my oldest daughter if she can get a few days away from Uni, they are all so busy with their jobs and study ....hopefully I'll be back at work before I know it. I'm currently waiting to have scans at the end of this month and then to see my haematologist , meanwhile lots of praying and positive thoughts. Oh and I'm finally going to go find a wig in the next week or two, have you got one yet? Do you have any advice on buying one? I hope you and your boys are doing well....always sending positive thoughts your way x ... View more

Hi Sueblue, Like you I have a diagnosis of NHL and I've just had my 4th treatment of chemo which is called R-chop personally there is no way I could be working during treatment , I've been tired and achy which is worse days 1-7 and I have the chemo every 14 days ..day 1 being first day and days 5-14 recovery, days 1-5 are treatment days as I was on a course of steroids that finished day 5, I was also advised not to work as I work with children and well to put it nicely they are germ carriers and it's very important to try and avoid infections and viruses. I hope your treatment goes well rest when your body tells you. ... View more

Hi Madmik thank you she had a nice day her gifts were all very practical which is what she wanted as she lives out of the home and shares with a friend but she is close by which is lovely , it was nice having family around I even had a couple of wines. I will be half way through this Monday as my 3rd round was delayed a week because there were no available beds in hospital so they could monitor me, hopefully I can get one Monday as I don't think it can be delayed longer than 21 days between each one , so I've had an extra week of feeling above average rather than just blah...I'm glad to hear your mouth feels better. It's quite a shock when your hair starts coming out, I did have a few cries when I was alone, but it got too much seeing it all over the place and losing it at the slightest touch that I had my daughter use the clippers on it and cut it back to a 3 , I heard cutting it too close to scalp can be quite uncomfortable, I've bought a couple of warm beanies and my mum made me up a few head scarfs which I wear around home. I wasn't going to get a wig but I might look into it once chemo is done so if I feel well enough to go back to work I don't have to go in bald , I don't want to scare the kids there lol although they would probably think it's cool...I'm just hoping my eyebrows stay. I really hope your doing well and your chest pain has settled down....try and find time to do something that's fun now and then when your up to it and keep smiling ....thinking of you ... View more

I hope your feeling a little better I think the chalky mouth is the worse but I keep rinsing with salt as advised . I hope your tummy has settled now and you can get about better .. I think we are both very brave and strong I guess we have to be, I'm feeling better now but not looking forward to my next lot on the 7th, on a good note my oldest daughter turns 21 on Friday it only seems like yesterday she was born, she's such a good girl, studies hard and works hard I can not wait to see how far she goes in this world of ours, we are having a small family get together for now and will do something special later......my 3 daughters are my strength they believe in me and I think well I raised these girls so how could they be wrong ...keep strong and fight this thing Madmik ..your often in my thoughts xx ... View more

Hi madmik I was wondering how things were going for you, I'm glad your coping okay with the treatment pretty much how I felt except I was starving all the time from steroids when I wasn't queeziy ... how long between rounds? I found in the second week I started picking up a bit. I'm in my second round now day 3 mine is 5 days , day 1 intravenous and steroids ,on days 1 2,345 ...day 4 a needle to boost white cell count . Different types chemos effect people differently. I spent day 2 this time in emergency as glands in my neck came up they have no idea why the ultra sound showed soft tissue swelling and saliva gland on one side a bit prominent, I'm thankful it's not nodes...might be a little reaction to chemo they are going to keep me in hosp over night next round to observe me....such a joyful day , hair coming out in clumps and looking like a bullfrog blowing out his neck when lithely do their mating calls hahaha ...a funny site that can be depressing too but I'm hanging on to the fact it's only temporary hair grows back and swelling goes down which it almost has , 2weeks to the day of first round I started losing hair. On more positive note I found some lovely knitted caps online and they came yesterday...I think I'll wear head scarf around house though as I get a bit hot and wool tends to irritate scalp , so I'll probably wear a fitted cotton one under those too until hair grows back or scalps less sensitive. So far I've learnt good days are to be savoured and bad days just go with it and let yourself feel what you need to and rest ...I'm trying to be as positive.as I can but gotta stop getting frustrated with myself when I have one of those days... And we are allowed to whinge sometimes aren't we ?...take care and look after yourself I hope you have plenty of support and using the services that are available. ... View more

Good luck to you too xxx and yes we will get there and be fine , I'm trying to see it as a little detour and then back on track for bigger and better things ... View more

Hi madmik I understand where your coming from and even into my first of 6 chemo treatments I struggle with it all being real. My girls won't say a lot either (20,19, and 16), my 20 year old comes with me for most of my appointmentts especially to my heomotologist ones as she retains more of what I'm told than I seem to...my mind goes straight into the worst case scenarios , my daughters tend to keep me positive..I've been a single mum for 13 years always the strong one always in control and able to see the positives, right now I don't know. Some days I feel it's not real it's not happening to me, other days I cry because I can not bare the thought of leaving my girls . I'm determined to get through this and be there for my girls I promised them always. I'm pretty angry too over the last week... I don't know the right or wrong here I guess there is none. ... View more