November 2014
Just an update on my CT Scan - A bulging disc is pressing on a nerve! I was sooooo worried, I honestly expected the worst even broke down crying with relief - the poor doc! Follow up appointment with my oncologist on Tuesday so he can see the CT results.
Thank you for letting me vent xxx
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November 2014
Thanks Topenddownunder & Nello for your replies. Good to know I am not alone in feeling anxious about the up coming scan.
I made the mistake of lifting my 4 year old (she was refusing to get into the car) and my back has been sore this past week, I booked into see my GP today and she sent me for a CT scan (my normal follow up is 13th Dec) so results are tomorrow. Soooooo nervous about this one. I had a Sarcoma in my iliac pelvic area, docs are not sure if its bone or tissue. I am currently 21months in remission which was totally unexpected as my survival rate was very low.
Results are tomorrow so I am, even though not very religious praying that everything will be okay.
Hope everyone else is keeping well.
xx
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November 2014
Hi all,
I know we all get worried coming up to the time of our CT scans, but does anyone almost get to the point of wanting to cry everyday leading up to it and worry yourself sick?
I had a sarcoma located in my pelvic area and I find that every time the dreaded CT Scan approaches I feel aches and pains everywhere.
Is it just me? Am I imagining it? I only noticed my sarcoma because of back pain or Sciatica as the first GP I went to told me it was! Luckily I went for a second opinion.
I know its always in the back of my mind that it will come back and I am absolutely TERRIFIED about it. I have a 4 year old who will be starting Kindy in Feb, we just celebrated her 4th birthday recently - a day I was told I would NOT be around for.
I am not afraid of dying but of not being there for my daughter when she will need me most. 😞
Does anyone else feel like this or am I just being silly? My hubby is my rock but I dont want him worrying about me anymore than he already does. My family dont live here and my friends have (thankfully) not had to experience anything like this.
I am feeling frustrated and alone xx
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November 2014
Hi Nello,
If you are worried about your cycles I would make an appointment with your GP he/she can do a blood test which can tell you what is going on.
I was concerned with my own cycles so I went to my GP who did a blood test I was referred to see a fertility specialist where I had a few tests and ultra sounds scans done.
I am in my early 30`s.
If you feel you need to talk more feel free to message me xx
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November 2014
Hi Nello,
If you are worried about your cycles I would make an appointment with your GP he/she can do a blood test which can tell you what is going on.
I was concerned with my own cycles so I went to my GP who did a blood test I was referred to see a fertility specialist where I had a few tests and ultra sounds scans done.
I am in my early 30`s.
If you feel you need to talk more feel free to message me xx
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November 2014
HI Emmy,
I am doing good thanks for your reply. How are you going? I have not met any other Sarcoma Sufferers/survivors so would like to hear your story x
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August 2014
Hi all, I am new to the site, well I did join two years ago but with the meds I was on I dont know what user name I used.
I am 32 and living in Perth with my hubby and young child. We were living in Kalgoorlie when I was diagnosed with a High-grade Sarcoma in my right pelvic area and was flown to Perth for treatment. I have had chemo and radiation and an IVC Filter fitted because of numerous DVT`s in my leg due to the tumour.
I was also fitted with a Vital Port which was removed in January of this year. The Cardiovascular team tried to remove the Filter as it has collapsed on itself but were unsuccessful. I have now been referred to a Vein Specialist who is sending me for an ultrasound on my legs and then will discuss with his team as to what they do next.
Is there anyone in or has been in a similar situation?
Kindest regards x
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