My husband was diagnosed with metastatic melanoma last week with lesions on lung and liver.  They did a liver biopsy. This week his scans show the cancer is widespread through his stomach lining, lungs and liver with liver duct blocked and some fluid in one lung. He was offered palliative care at home. The home care team are on a well desrved holiday break as there is only one team for the entire Tamworth and district area and they will not be back til Tuesday. It makes me angry that the powers that be think this is an acceptable situation for people like ourselves who have the misfortune to be diagnosed at this time. As wondercul as the nurses doctors and palliative care team at the hospital have been it is very scary to be dealing with the unknown with such a fast spreading cancer when one week has made so much difference already and my husband really wants to stay at home. What is the experience of other patients and their families? ... View more

Haven't posted for a while because both my husband and myself had continued to be NED. However two days ago my husband was concerned his urine was going very dark and he was feeling ill and in a lot of pain so he took himself to hospital where they tested his urine and said there was something going on with his liver. He had xrays and a ct scan done and now has lesions in his lung and liver. It is devastating. Won't know the full treatment plan until after Christmas due to testing and holidays but doctor said it is bad. It is fast growing lesions and probably metastatic melanoma. He had his previous scan in May which was clear. As he has previously had major doses of chemotherapy when he had AML and an autologous transplant it may narrow his treatment options, however it may be in his favour that it was 20 years ago. Open to discuss this with anyone who has experienced the same. Thanks ... View more