Hi Hannah, I had 30 treatments of radiotherapy over a 42 day period and I got to week 4 then I got real tired, like sleeping 18 hours a day which lasted for about 6 weeks and I still get tired in the afternoons and some days I have a nap. I've spoken to other people who have gone through it as well and some get the tiredness some didn't. Two that didn't get the tiredness said they exercised everyday and they thought that helped. I tried to do that but was too tired so I just slept. So best advice is if you need to sleep and you can then have a nap/sleep. I lost my hair at the treatment site but it has now regrown but it's finer and a bit lighter in colour (ie close to gray). I've also met people who haven't had their hair grow back. So I suppose it all depends on the person. I've changed my diet and try to cut out sugars and I take supplements. I hope they are making a difference as I tell people I would hate to go through all this and then die, but I believe they are helping and that matters. I also know there is going to be a cure for brain cancer within the next 3 years as I saw an interview with Dr. Charlie Teo and when they asked him if he would live to see a cure for brain cancer he said as long as he didn't drop dead in the next 2 to 3 years then yes he would. I would like it to happen today as we need it to happen as soon as possible. Take care, Paul ... View more

Hi Magagie, Thanks for your message.My MRI on the 1st July was good and I should of been in the middle of cycle 5 but my platelets are still recovering from cycle 4 so the Doctors are giving me an extra 2 weeks before starting cycle 5. Will have my second MRI on the 7th Oct and hopefully that will be good too. I really believe there will be better treatments in the next 12 to 18 months, so just have to prove the Doctors wrong when they gave me a 12 month in Feb. What trial are you on? I looked for trials when I got diagnosed but the doctors just keep saying we will look at those options when the current treatment fails. Not if but when, which annoys me. Thanks, Paul ... View more

Thank you for your reply. I've now finished the radiation and I lost my hair at the treatment site, but my skin didn't turn red. I did get very tried at around 4 weeks in and I still need a sleep in the afternoon and its been 2 months since I finished the radiation. I'm on the 5/23 cycle of chemo now (5 days on followed by 23 days off) so that might not be helping the tiredness. But I'm hoping that I get over it soon as it makes working very hard when you want to go to bed for a hour around 3pm. I have my next MRI on the 1st July and hopefully that is all clear. As I believe effective treatments and maybe a cure is going to happen in the next 12 to 24 months and I plan on being here to see them. Thanks, Paul ... View more

Hi Doug, Thanks for the info and I was on temodar as well and doing well for the first 4 weeks, but because of the public holidays and maintenance on the radiation machine my 30 radiation treatments are over 7 weeks instead of the usual 6 weeks. I must be very sensitive to the chemo as my blood levels dropped from really good levels and being able to work then in the last 2 1/2 weeks where all I want to do is sleep, and as my doctor said well lets hope it's kicking the cancer around just as much as its doing to your blood levels. But at the moment they can't tell as I have no visible tumour but as you would know they said it is impossible remove 100% of the tumour through surgery as they would have to take too much normal brain and cause a lot of brain damage. I've been reading a lot of exciting stories about new drugs going into human trials this year or early next year that have been very successful in animal trials and I just hope they are just as successful in the human trials and that way we can have better treatment options and hopefully maybe even a cure even if we combine a couple of them together. Thanks again, Paul ... View more

Hi Doug, Thanks for the reply. I still have 2 more Radiation sessions left so I finish on Tuesday 21st. I haven't lost all my hair at the treatment site and it looks like some will hang in there. It seems only the grey has hung around. I've been really tired the last 2 weeks but the chemo has knocked my blood counts to the floor and it'll be 3 weeks on Wednesday since I stopped the chemo and I've had 4 platelet and 2 red blood transfusions in the last 3 weeks. The doctors said it could take 4 weeks for the blood work to come back to normal but if it's still down in 2 weeks they will do a bone marrow test to see if the chemo has damaged it, but they don't think that will be the case. I'm hoping this is the week they start to turn around as I feel like a pin cushion, as I've had blood tests Monday to Saturday for the last 3 weeks plus the cannulas for the transfusions. So everything is crossed as that is most likely causing the tiredness. Thanks, Paul ... View more

Thanks Greg for the info I'll try the ginger tablets and see how they go. Thanks, Paul ... View more

Hi Jodii, GBM is the abbreviation for Glioblastoma multiforme which is very aggressive form of brain cancer. There are not a lot of treatment options at the moment besides surgery, radiation and there really is only one effective chemo which isn't effective for all people with it. I've been looking at what research is happening in this area and from what I seen they think they are close to making some break throughs in the next 1 to 5 years. The only problem is that the average survival for people with GBM is 14 months. I plan on being above average and being here when they bring these trials from animals to humans. I think gene therapy is going to make a big difference to the survival rates for all types of cancer especially brain cancers and I'm going to be here to see it. Cheers, Paul ... View more