Well my journey started in December 2014 just before Christmas. Up until then I was working part time 20 hrs a week loving it as well. I became quite ill with diareah and stomach bloating while on annull leave in Sydney having Christmas with my brother and his family. Finally arrived home 28 th December and had a Drs appointment on the 5 th Jan when I was due back at work I was tretated for constipation but the bloating did not subside so I was sent to Coffs harbour for X-rays where they found a bowel obstruction a ct scan was ordered straight away and they then found that my bowel lining was thickening next to the obstruction..
So hospital visit the next day and a colonoscopy that was now the 9 th jan2015. They could not see very much and I was assured that it was not cancer. January 20 2 nd colonoscopy and was told it might be cancer and I would need to have surgery to remove the bowel obstruction.
February 2nd surgery a 10 cm tumor was removed and bowel lining where it had thickened 3 days in hospital no rest there I was happy to go home to Bellingen. 1week latter I got the news that I did not want the 10 cm tumor was a adno carcinoma with 2 affected lymph nodes out of 30 removed the bowell lining with 37 out of 37 lymph nodes is small cel neuroendichrine cancer. I was sent to RPA in Sydney for a pet scan in March where I received more bad news that scans showed that my cancer had spread to my liver with around 6 tumors and to my bones from my neck to my hips with too many tumors to count . I have had my first chemo and on to my second which was delayed due to white count being low. I have lost all my hair my husband and I are matching nude nuts now .
I am so lucky that my husband and his parents are so supportive my kids ( young adults are still in shock) .
It's hard to here that you have a cancer that can't be cured. I am positive .
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So sorry that centre stink won't pay you but you do need to keep applying for the payments this is what has happened with my son he has epilepsy he was refused payment but has re- applied again that's now twice. Hope you get the deserved payments and less stress for you as well.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.