November 2015
Hi
I hope you are feeling better.
During my Dad's battle with pancreatic cancer he used an anti-nausea medication called Ondanzetron.
It will require a script from your GP and can be expensive if you are not on a concession card, but boy is it good!
It comes as a small wafer, which you place under your toungue. A very quick route for medication to work, so you feel better, quicker.It's also long acting.
Its used routinely in the hospitals for post operative clients and has few side effects.
Best wishes Totoro
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November 2015
Hi Lindamooney,
I'm really sorry to hear that your having a tough time of it. Brain cancer is so different to the others because it can fundamentally effect who you are due to the changes it can have upon your brain. But in saying that, time can heal just about most things. It sounds like it is early days, so give yourself some time to recover.
My Mum had Non-H. lymphoma 6 years ago, a 8.5 cm wide tumor in her frontal lobe! I still cant believe she made it through that espisode.
Have you considered seeing an Occupational therapist? They are highly trained allied health professionals who can assist people in their move back into work again after injury and also cancer.Here in Australia there are private and public OT's. Try and find one who has experience dealing with adults and helping people back to their former lives post cancer. A good counselor or psychologist could be useful too?!
best wishes. Totoro.
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September 2015
Hi All
If you can get yourself in to see a dietician, if you haven't seen one during your treatment. they are experts in what to eat while experiencing the different phases of your cancer treatment.
Here in WA ( sorry it sure about the other states) you can see the government ( population health departments) dietician for free via a GP referral.
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June 2015
So very sorry about your Mum. It's one hell of a ride isn't it, cancer certainly has a mind of its own!
Staying positive is the only way to go, it keeps you buffered and boyant for your Mum. It's sounds like your two are close and this will be a real asset to you both during those days when you need it most!
My Dad has metastatic pancreatic adenocarcinoma. To begin with they thought his primary was in his liver, but it turned out to be his pancreas, sadly it's inoperable and chemo has been helpful in controlling the growth of the tumours. Like your Mum he also has the cancer around a major blood vessel ( abdominal aorta), he's had lots of leg swelling from this, so tell your Mum to keep those toes wiggling and ankle circling when ever she thinks too, to help with the circulation to her legs! All the best.
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June 2015
My Mum had radiation to the frontal lobe of her brain, about 5 years ago for a 8.5 cm butterfly shaped non Hodgkin's lymphoma. It hasn't come back, so on that front it certainly did the job ! She didn't get any limb weakness or loss of function to her body. She also got the red sore skin, but with time this passed. paw paw cream is great for this!
The hair around the site of the lymphoma grew back,it's quite thin in that area but not noticeable. After her illness though her personality slightly changed and I've never been able to find out if it was the lymphoma and or the radiotherapy that may have caused this. It's so subtle a change that I am not sure that she is even aware of it. It's certainly a side effect which Mum wasn't warned of before her radiotherapy and I know it wouldn't have stopped her from having it because it has saved her life and given her another 5 years and more to come I hope!
All the best and I hope your well again soon .
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June 2015
Hi!
Thanks to you all for sharing your stories, I really value your honesty and the words of wisdom!!! I dont feel quite so alone for reading your posts.
My Dad was diagnosed with pancreatic cancer 2 months ago but instead of them (Mum and Dad)finding that people are pushing them away, they are doing the distancing!
They dont seem to realise what they are doing and any words from me that might suggest that they need to open up to their lovely friends is shot down in flames. Even their approach to my sister and I is one of exclusion and seperation. We offer to do little things like mow the lawn/gardening, we get 'oh no, the Cancer council can get volunteers to do that for us, dont worry yourself'!!! You have a family to woory about about and you work, they told me today!!
Yikes!
While I realise that it really isnt a big deal in the scheme of things, I do understand that Dad is dying and making him comfortable is all that really matters, it helps me to feel a little more at ease that I can be of help in some simple way. Their decline of offers to help do hurt and ultimately disallow us to be involved in Dad's care through his final days.
Another aspect which complicates the entire situation is that Mum had Non-Hodgkins lymphoma to her fronttal lobe 5 years ago and the scarring/radiotherapy has changed her personality to whre she now has a strong level of unfeeling about her. To probanly complicate matters I am an RN with 20 years experience. So here I am putting my foot in it constantly, trying to explain things to them about the medical treatment and Mum takes an afront that I am telling them what to do!!! Our journey as a family has only started, but boy what a trip it is going to be!
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June 2015
Hi!
Thanks to you all for sharing your stories, I really value your honesty and the words of wisdom!!! I dont feel quite so alone for reading your posts.
My Dad was diagnosed with pancreatic cancer 2 months ago but instead of them (Mum and Dad)finding that people are pushing them away, they are doing the distancing!
They dont seem to realise what they are doing and any words from me that might suggest that they need to open up to their lovely friends is shot down in flames. Even their approach to my sister and I is one of exclusion and seperation. We offer to do little things like mow the lawn/gardening, we get 'oh no, the Cancer council can get volunteers to do that for us, dont worry yourself'!!! You have a family to woory about about and you work, they told me today!!
Yikes!
While I realise that it really isnt a big deal in the scheme of things, I do understand that Dad is dying and making him comfortable is all that really matters, it helps me to feel a little more at ease that I can be of help in some simple way. Their decline of offers to help do hurt and ultimately disallow us to be involved in Dad's care through his final days.
Another aspect which complicates the entire situation is that Mum had Non-Hodgkins lymphoma to her fronttal lobe 5 years ago and the scarring/radiotherapy has changed her personality to whre she now has a strong level of unfeeling about her. To probanly complicate matters I am an RN with 20 years experience. So here I am putting my foot in it constantly, trying to explain things to them about the medical treatment and Mum takes an afront that I am telling them what to do!!! Our journey as a family has only started, but boy what a trip it is going to be!
... View more
June 2015
Hi!
Thanks to you all for sharing your stories, I really value your honesty and the words of wisdom!!! I dont feel quite so alone for reading your posts.
My Dad was diagnosed with pancreatic cancer 2 months ago but instead of them (Mum and Dad)finding that people are pushing them away, they are doing the distancing!
They dont seem to realise what they are doing and any words from me that might suggest that they need to open up to their lovely friends is shot down in flames. Even their approach to my sister and I is one of exclusion and seperation. We offer to do little things like mow the lawn/gardening, we get 'oh no, the Cancer council can get volunteers to do that for us, dont worry yourself'!!! You have a family to woory about about and you work, they told me today!!
Yikes!
While I realise that it really isnt a big deal in the scheme of things, I do understand that Dad is dying and making him comfortable is all that really matters, it helps me to feel a little more at ease that I can be of help in some simple way. Their decline of offers to help do hurt and ultimately disallow us to be involved in Dad's care through his final days.
Another aspect which complicates the entire situation is that Mum had Non-Hodgkins lymphoma to her fronttal lobe 5 years ago and the scarring/radiotherapy has changed her personality to whre she now has a strong level of unfeeling about her. To probanly complicate matters I am an RN with 20 years experience. So here I am putting my foot in it constantly, trying to explain things to them about the medical treatment and Mum takes an afront that I am telling them what to do!!! Our journey as a family has only started, but boy what a trip it is going to be!
... View more