February 2017
Is IPTAAS available for partners, next of kin, carers to visit there loved one in hospital? I live 230km from where my husbandis having a series of High Dose Chemo followed by Stem cell transplants, he is quiet ill and we have kid at home, so I am down in Sydney every weekend, and then do a day trip on Wednesdays, the fuel and accomodation is starting to add up.
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January 2017
I can't I still need to work and deal with the kids at school. I spoke with his Drs today and he hadn't passed on any messages that I wanted to talk with them.. The depression with the cancer is making it hard and the drip of Iimformation he is giving which isn't quite right either. He got rather upset with me on the phone tonight because I explained what the Drs had told me, and he disagreed with what they said. I just think cancer sucks and it's hard, and if it doesn't kill either of us, then we will go from there
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January 2017
My husband is in hospital 3.5 hours away his had high dose chemo and a stem cell transplant, we can't afford for me to stay down there. But the catch is he is so unwell and doesn't get to message or call me very often. I have no no idea how he is and what is happening down there. I understand the nurses are busy, but I am struggling here not knowing. I have tried ried to ring the ward, but no one answers, I even resorted tonight to emailing his hematology nurse tonight in hope they ring. i am at the point of farming the kids out and sleeping in the car in the car park at the hospital just so I know what's going on.
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January 2017
I have two teenage boys (17 & 15), and my husband was diagnosed with stage 3 germ cell testicular cancer at Easter 2016. He had BEP chemo at our local hospital and then TIP chemo with stem cell harvesting in Sydney. Now he is in hospital in Sydney having high dose chemo and stem cell transplants. I have continued to work throughout his chemo, for sanity and financial reasons, although he is still on sick leave and collecting a wage, the cost of drugs and the accomodation in Sydney is chewing up our money and we are going backwards. i would really like to be with him, but I need to work and look after the kids. is anyone else out there juggling it all? I feel like I am not doing any of my roles, mother, wife, carer and employee very well but don't really have much else I can do.
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January 2017
1 Kudo
My husband has gone through cycles of bad moods, verbal abuse and then he will be the sweetest guy you will ever met. To start with I ignored it, but it gets to the point where you just can't take it any more and you lash out back at them. I know it's the stress and the chemo but it's still hard. I have had days where I sat in the car thinkng I could just drive away. But thankfully my husband will come out the other end and will hopefully go back to being him. Counciling also helps them to express all those feelings. Big hugs
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November 2016
1 Kudo
I am talking with councillors, the problem is my husband isn't and won't, he mocks them, I am going to speak with his onocolgy team next week when we are in Sydney and see if they can help. I cant ant continue this way, it's too hard on the kids, he needs help.
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November 2016
1 Kudo
My husband was diagnosed with Stage 3 germ cell testicular cancer at Easter this year. We have done BEP chemo for 4 cycles and had surgeries to remove brain tumours and a tumour from behind the knee. We were about to lung surgery but discover the cancer had become active again, so now having TIP chemo which will be followed by CE chemo in the new year. i say we because everyone in the family is effected by cancer, even if we don't have it, I have put everything on hold to help him and our boys get through this. It's a long road, I am still working and am the sole driver in the house. my husband feels that he is the only one going through this roller coaster and has become very self centred and seems incapable of being able to make adult decisions. After 10 **bleep** months of dedication, sacrifice, isolation and emotional upheaval trying to keep this family together and relatively normal. Tonight after coming home from work and falling asleep on the lounge only to get up to cook dinner for everyone and iron school clothes, I was destroyed in one sentence. I was told that I solely was tearing my family apart, was angry and selfish. So it turns out no matter how much you give, sometimes people just don't see or appreciate it. It's left me unsure, alone and total devastated. i would like my nice husband and life back not this **bleep** cancer one.
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November 2016
2 Kudos
Who do you tell When the news is great Tell the world Let's celebrate Who do you tell When the news is bad Lock it up Let's commiserate Who do you tell When your world caves in Tell who I don't need to counsel you too Who do I tell I need to be free This burden could kill me
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November 2016
Matt, my heart breaks for you. My husband was diagnosed with germ cell testicular cancer at Easter this year. We have had 4 cycles of 21 day chemo straight away, surgery to remove a tumour from behind his knee and surgery to remove 3 small tumours from his brain, these surgeries went well and were preparing for surgery on his lungs when the scans showed the cancer had flared up again. So now we are 2 cycles down into high dose chemo, again. The Drs and nurses are wonderful and keep us informed every step of the way. Our 2 teenage sons have been amazing throughout this whole crappy life we currently live. I can can cope with all the medical stuff and the Drs are still telling us that they hope to completely stop the cancer then cut it out. But my big issue is all the emotional changes to our family, I miss my husband, I want to old hubby back, I am sure he will get back to normal one day, but for our normal is so far removed from normal that I wonder how we, I get up each day and continue. please if you need to chat don't hesitate Allison
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