Thank you for your kind thoughts! I'm going to meet a hospital social worker in the coming days. I'm also taking 3 nights away while my husbands mother visits. It will be great to get some sleep and do some things for myself ie., read a book. I'm exhausted and fear my health is failing as the stress has been difficult to bear. It's people like you who make a real difference.  Thank you! 🙏🏻😘 ... View more

I have recently hit the wall.  My husband has a rare cancer and we have just had our 11th trip to Sydney to RNSH (4 hour drive) for care in just over a year.  I also work full-time and, like you, chew through the money on additional medications, doctors, pathology not covered by Medicare, accommodation, fuel etc...  We have gone so far backwards in the past 18 months it is shocking, not to mention very stressful!!  He has had 4 surgeries for this cancer (x4 brain, x1 throat) and it's now in his pancreas.  He lost his pituitary gland in one of the brain surgeries, which has left him on a myriad of medication.    Thankfully I have some flexibility at work so take my sick leave as carers leave for the majority of it.  My husband is so sick he cannot do much without a Carer and his family do not seem to care one bit.  I am solo carer and solo income earner.  He is at home alone, very sick every day whilst I go to work so we can survive.  It breaks my heart!  We only have furry kids at home now but trying to juggle doctors appts, scans, bill payments, call backs, follow-ups, scripts, etc.... care for him and work full-time has just about "killed" me, or so it feels.  I feel numb - drained totally of anything me.   I really do not know what to do anymore.  There is no light at the end of the tunnel and certainly no-one to support us (apart from my mum).   Our situations sound very similar and I empathise with anyone living like this. ... View more

I totally get it. I have a similar situation. My husband is 44yo. We don't have kids together but he has two adult children, both who struggle with the guilt of not being able to help us more. He sleeps a lot also. Rarely go anywhere as he simply feels too unwell or we go out and need to come home quickly due to pain, vomiting etc. I feel a little numb, traumatised emotionally. We moved out of the city almost 2 years ago to get a better life. We love our home but it is a lonely place for me. He doesn't like people coming over and I, like you, try to fill in my time around the house. I have my own health issues so also need a lot of rest. Working full time means I stress & worry all day but his medical expenses & medication costs take up a large amount of my income. I don't know what to do anymore. We don't have much support. My mum is wonderful but his family r selfish & cold. A source of great anger for me! Thinking of you as u continue on the journey you r both on. Thank u for posting as I read a very familiar story. Love & prayers 🙏🏻🦋 ... View more