Hey there, I have had stage 4 lung cancer. It metasticised to my brain metastasis about a year ago (April 2016). The cancer was originally diagnosed in August 2015. Initially I had chemo and 30 radiotherapy treatments for the tumour in my right lung, which had spread close by into my lymph sysyem. Last May, after 10 whole brain radiotherapy sessions the tumour stopped growing, but it left me physically wasted for 5 months. My Oncologist started me on Nivolumab (Opdivo) late in October last year. I am treated for 90 minutes every fortnight. The results have been far better than expected and although my 2 tumours haven't shrunk yet according to a CT scan in January, they have not grown either. I feel physically better than I have for a year now and am just taking it day by day. I am also growing wheatgrass as a Chinese friend of mine suggested it. I juice it into 75 ml shots, one a day. I hope this may offer encouragement to others who may consider Nivolumab. It has been life changing for me. At this moment no one would even know I have been this ill! I think staying positive and praying are the 2 other things I have going for me, as I have 3 kids.
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Hi Sandrab, I hope you are recovering. I can relate to what you are saying as I was diagnosed with Stage 3a cancer in August 2015. t started in my right lung, After 7 all day chemo sessions and 30 radiotherapy sessions I improved to the point of being able to walk up to 6Km a day. Then in early May 2016 I was diagnosed with an inoperable brain tumour. That required 10 more whole brain radiotherapy sessions which stopped the growth of the tumour but wiped me out for 5 months, then the cancer became active in my right lung again. Now it's stage 4 and I am being treated with "Nivolumab" every 2 weeks intraveniously (going on 4 months now) and it has been life-changing. With the exception of some lingering fatigue I feel better than I have in 12 months. Have you asked your Oncologist about this treatment and if it is relevant to you? And yes, so important to stay positive and keep fighting!
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.