Hi all. I was diagnosed with Diffuse Large B Cell Lymphoma on 4th Jan this year. I also have common variable immunodeficiency diagnosed 4 years agoish. I have had my lymphoma for over a year before diagnosis was made, unfortunately the doctors didn't listen to my symptoms when I was mentioning them. I then gave up as I felt they just didn't believe me. However that being said I was suffering bad to severe headaches daily for 6 months before my diagnosis. I was told by my specialist I would not have anymore headaches after my first chemo ( R-CHOP ) I had my 5th chemo 10 days ago.. my pain meds strength was increased. Oxytocin, My headaches are progressively getting worse, vomiting has started which I did not suffer with from chemo fortunately. I get dizzy, of Balance at times absolutely no energy, the itching had before treatment has returned, I have other side effects from the chemo but I don't think these headaches and dizziness getting worse is chemo related. I've mentioned this to my specialist along with me saying I feel something is wrong aside from what we already know... My MRI and CT scans are clear my bloods are ok so I understand it's difficult for him. I have one more chemo yo go then radiation, I am now pretty much house bound due to these headaches and dizzy spells... I'm 42 worked full time now just blahhh If anyone has any ideas I would love to hear from you. Sorry if it was a negative post I just needed to put it out there as friends who I love just can't understand as much as they want to 😀 Wishing everyone every success with treatmemts and future's
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