How does one go about and become an advocate. I have been thinking about something on those line. It would be good to start because I don't think patients are given a fair go at times by Doctors.
... View more
Hello everybody, I find many Doctors's attitude surprising. I critised my radation treatment for Prostate cancer to my specialist. I compared my cancer treatment now with the previous treatment 2 years ago. Then it was quite good even with complications I had. I told him that that there were problems with waiting times and why you were given a time and then treated an hour later. When I complained to the staff, the excuses were the machines had reached their maiximum use or there were software problems. Orgaisational stuffups and organisational apathy. Nursing reviews were less than useful in my case never given. When I complained to the specialist Oncologist, he said : "Are you emotional about things"? The inference was you could'nt be emotional if you have cancer and see the chaos of radiotherapy that had descended compared to a couple of years before. The failure of the medico to listen to my gripes is typically of years of Doctor run establishment. Given recent events things might be changing but very slowly Many years ago I worked in a hospital where I could see people living in a tiny world where patients were always wrong if they complain they were wrong because the hospital and its medicos and nurses were perfect. The system does not want to get better unless serious problems are exposed. I believe that patients should play a greater role to improve the runnning of our health system but that is probably perhaps an idea for the far future. I don't see that happening soon.
... View more
I like the programs of the Cancer councils but my gripe is with the Doctors. My specialist is sometimes away and I get stuck with the Registrars. The two I have seen verge on the 'cautious in the extreme' and have planned for PETSCANS and extension of the hormone treatment from 6 months to the 18 months. The is really invasive treatment. I was amazed. I thought it was joke or jokes. The next Rgistrar told me I needed a PETSCAN because my 'PSA was 'a bit high'. When my GP received PSA a few days before he told me it was normal. Look, I believed the GP for 2 reasons. One, I have known and trusted him for 29 years and secondly he has many prostate patients and he is more trustworthy than some trainee Doctor who happens to be called an Oncology Register.
... View more
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.