Hi all. Diagnosed May 2021. TURBT Low grade non invasive tumor. 3month cysto just a small scrape. 6 months later and cysto revealed 8 new tumors. TURBT preformed and Surgeon came in whilst I was in recovery and said I’d need to start BCG and that Oncology would contact me. That’s it. That’s all I know. Should my surgeon have given me more information or will I get that from Oncology when I go for treatment? I feel a little in the dark. If the tumors have changed would they tell me or should I be asking more questions? If so who should I be asking? I don’t have a great regular Dr( SE Melbourne any recommendations welcomed) I feel like this is all happening to someone else. My understanding is BCG treatment is to prevent the tumors from growing back is that right? So essentially the type of cancer may not have changed and BCG is a preventative? So many questions and nobody to ask. Anyone able to fill in some blanks? Need somewhere to start. Thanks 😊
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Hi, I’m at a loss. My Dad has just started Chemo for lung cancer and it’s not going well. Here is my story I’ll tell it as best I can. My Dad who is 71 was diagnosed with bladder cancer earlier this year. He was advised the cancer was superficial and would be removed and he would undertake BCG. He finished this in October this year and had a follow up appointment booked for another look around in Dec. we are at this stage feeling very thankful that we have got through the worst of it and he was going to be ok. In late Oct he started to feel unwell. He was admitted to hospital with influenza and because he suffers with emphysema it was a worry as his breathing was suffering. He managed to get home after a week and seemed to be doing ok but days later started to experience pain in his back and shoulders he was again admitted to hospital with suspected phenomena and fluid on his lungs. Some fluid was removed and tested. It came back with cancer cells. He was booked to see the oncologist the next week and started chemo a few days later. It has been a week now and he is still in hospital. The saline/chemo didn’t leave his body as anticipated so they were keeping him in to monitor what was happening. He did eventually go to the bathroom but they wanted to remove fluid still on his lungs via the spine(not sure what this is called) but can’t as they are worried he may end up with a punctured lung in top of everything else. His oxygen saturation is only at 80% with oxygen full time. Which is making him very weak. In the mean time they have taken more scans and found a spot in his shoulder which the oncologist described as a fracture from cancer? but we still don’t know for sure. He is in a bad way and I’m so unsure of what the future holds. We know he won’t get better but he has gone down hill so dramatically since the chemo. Is this a side effect of chemo? Or is it the cancer I just don’t know is this normal? . I will call the cancer ward as I’m interstate and we have booked to go home for Christmas. I’m just so lost I’m doing my best to get through every day The not knowing the details is horrible. I’m sorry for the long post just needed to get it out A
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.