About abchari

abchari

Hi all. Diagnosed May 2021. TURBT Low grade non invasive tumor. 3month cysto just a small scrape. 6 months later and cysto revealed 8 new tumors. TURBT preformed and Surgeon came in whilst I was in recovery and said I’d need to start BCG and that Oncology would contact me. That’s it. That’s all I know. Should my surgeon have given me more information or will I get that from Oncology when I go for treatment? I feel a little in the dark. If the tumors have changed would they tell me or should I be asking more questions? If so who should I be asking? I don’t have a great regular Dr( SE Melbourne any recommendations welcomed) I feel like this is all happening to someone else. My understanding is BCG treatment is to prevent the tumors from growing back is that right? So essentially the type of cancer may not have changed and BCG is a preventative? So many questions and nobody to ask. Anyone able to fill in some blanks? Need somewhere to start. Thanks 😊

little_stitcher

Hi abchari, I'm so sorry you're going through this. One of the very common themes on this site is that it's the not knowing that's really scary. Once you know exactly what's going on, you also know what is not going on, and that can seem easier to cope with than trying to cope with different potential situations at once. You seem to be coping the best way possible- just taking one day at a time (that's the only way you can do it really, isn't it?) I'm glad you found this forum, it's a great place to come to connect with people who have been where you are, and ask/vent/encourage/celebrate/scream/whatever. Just keeping taking one day, or even one minute, at a time, and know we're all here cheering you and your Dad on. Sending a virtual hug, Emily

Newly diagnosed Bladder Cancer

Re: It’s all happening so quick

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