Hi Kate Well Neales oncolgy appt wasnt great. We has a radiation oncology appt today to have a Radiation cyle of 2 weeks to his back Then back to see oncologist on the 19th , He is commencing chemotherapy 2 weeks after radiation, He has to have a dental check prior as he will go on some drug for his bones also he will be on cortison while having Chemo. His chemo will be once every 3 weeks for 6 to 10 sessions. Its a lot to take in.I am feeling angry at the moment as Neale is walking around with hawian shirts on and singing always look on the bright side of life, arrrg I just want to throttle him.   I know its his way of coping .Then he turns around and says to  my daughter that seeing we are all together for easter maybe we should tell the grandkids. He hasnt even told his kids yet. I told him that my kids will discuss it with the grandkids in there own way. I recieved the talking to children from you guys from  my last phone councilling group.    I ring my dad every day and should find out either tomorrow or wed what the plan is  I just want to be with my mum and dad. It sucks big time I think I will ring that number you have given me tomorrow when Neale goes for his scan for radiation planing.    Its just all a bit too much.   We asked about prognosis for Neale The oncologist said it was a hard thing to say , she mentioned months to 24mths. but with advancements its hard to say , there are other drugs and trials.    We had planned a big trip in July acroos the centre to northern WA sadly we wont be able to do that .    Cancer sucks and I hate it. Still feeling numb cant cry I just get angry .   Cheers Roz    ... View more

Hi first of all hugs and more hugs to you. I am a carer of my husband who has stage 4 prostate cancer and we are heading to the oncologist today . My story is a little different but similar. My hubby doesnt get angry but doesnt communicate sometimes he lives with his head in the sand , Decides that its ok to forget it meds. He drinks to much. Very frustrating . What I did was chat to his oncologist about his relunctance to take control of his treatment. I also decided that as a carer I was going to still be his wife not his nurse and that he was an adult and his choices are his choices , I also decided that I had to take care of me, selfish as it might seem but for me to deal with this desease and we to as carers are affected we might not have cancer but my gosdit affects us, I had to be fine mentally and physically. I continue to do things for myself by doing this it gives my hubby time to himself, I think as wives we want to be there all the time to make it right ,we hover we nag we want them to fight, May be he wants space time out .]to not think about cancer ,  I have told my hubby about support groups but didnt tell him to join, his choice right , I also joined the telephone suppot group through the cancer council its for carers and have group councilly every fortnight ,I go to the bedroom shut the door and its my turn to talk about how I feel about stratgergies listen to other ppl in the same situation and how they deal with it, and sometimes just knowing that you are not alone and its alright and that yes it normal for all these feelings and sometimes there is no answer it sort of makes it easier. I also just go up to my hubby and say I need a hug and I am scared .Just had a thought I think the the Vet affairs have support groups as well you could google it . Men arrrrg Cancer arrrg stubbornest arggggggg anger arggggg .PS thats me screaming . Hugs again look after you .Keep up withthe support groups writing everything down is also a release.  Cheers Roz ... View more

Hi Maddie and Netty So sorry to hear your partenars diagnosis and what comes with it. I to understand how horrible it is to wait . My hubby has multiple spinal mets but has no symptoms We found out a couple of days ago that he has an epidural mass with minor spinal cpmression out appt isnt till Sat . The wait is unbearable so feel your pain. Hugs to both of you. Have you done the telephone support group for carers through the cancer council I have had 2 sessions and find it helpful to chat to ppl in your own situation. Roz ... View more

Thanks Emily  I will accept that hug.Thanks for your reply.   Our next appt is the 18th Jan . It is a bit scary as Neales PSA is till rising so not sure where out Journey is going .  I feel in my gut that we are on the downward spiral.Lucky Neale is sypmtom free at the moment . Unfortunately I am in the medical field and know what is ahead .  Its hard to plan to do anything as we dont know whats next.Arrrrgh  Cheers Roz ... View more

Hi Kate thank you for your reply . I have been to all of Neales appt over the 10yrs. Neale is a bit of bury your head in the sand kind of person. He has at times decided he could go without his treatment for a couple of weeks  rather than go to the Drs . Very frustrating. We go to a private oncoligist  and I find her a bit wishy washey . Neale is happy with her and we have been going to her for some time.  We dont actually have a team . She is on sick leave at the moment and we go to her Locum on the 18th Jan . Sometimes I think we should have gone public as they have a huge support system . Thanks again its nice to have a place to chat really dont have anyone to chat to . Ppl ask but dont really dont want to know so my answer is yeah all good . Cheers Roz    ... View more