Hello, I am so pleased you are on the up and up. You have been through the wringer haven’t you? I was diagnosed in November after years of trying to find out hat the bloating etc was in my tummy....I thought maybe a food intolerance, ai do tend to get constipated so often wondered if that was the problem, IBS and the what if’s went on and on. Had a coupe of colonoscopys, untrained sounds, bloods, urine, stool tests etc, but not until the Laparoscopy in November did I learn what was lying in my tummy. Part of me was relieved, I had an answer, and I also learnt it was the cause of a clot on my lung that was diagnosed in Sept 2016 (gone now). I’m 61, and am very matter of fact about what lies ahead for me......I’ll be having the op at the PA in Brisbane, and have an great surgeon. I have no idea how long this has been with me, the clot was a previous one when diagnosed. I’ve tried to think back to anything that may be when the appendix perforated......all I can think of is back in about 2008 I woke with always pain and vomiting. My husband at the time took me to the hospital where they couldn’t tell me what it was - this was Mt Isa, so say no more I’m having another Laparoscopy in 1 Feb so after that I hope to have more of an idea what the next step will be. I don’t know what else will need to be removed. I’m sure I will have lots of questions a long the way, so thank you for been there for me to answer them. I still work full time too so I have leave etc to arrange when I know more. When do expect to loose the ileostomy bag? Did you loose much weight....I recently lost 16-17 after seeing the specialist re the clot on my lung. Looking forward to hearing back from you. Jenwren
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Good mmorning. I’ve been reading through these threads with interest because I need to have this operation.....not exactly sure when yet. I’m in Brisbane.......from what I have heard and read have a wonder surgeon but really interesting to speaking to people who know what is playing through my mind, those who are also about to go through it. Jenwren.
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I need to say this operation sounds so huge and scary - I don’t know when I’m having it but I do know I am under a great surgeon which has made me feel a lot more at ease. I am interested in hearing from anyone who has been through this operation and to give me some hints on how to prepare for it. I’m interested in their story......how they learnt they had a problem, their symptoms etc. By the way I live in Brisbane.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.