Hi Kate, yes I have the swelling in my leg (lymphoedema, I have had high grade spinal cell sarcome last year and had the massive surgery to get it removed and my leg reconstructed. With this they found that the lymph nodes were compromised in radiation (28 rounds) and the surgery. My leg is always larger than the other and the knee is always swollen and sore. I have to wear a compression stocking from my toes right to my groin with the garment fitting around my waist. It is difficult getting on and off and using rubber gloves does help. I do the drainage therapy but honestly at a cost of $95 each time I find that I don't go probably as often as I should. I keep getting told by my surgeon that in time they hope that the swelling will go but it is horrid especially during the warmer weather to wear the stocking. I recently went overseas and I did wear the stocking during the flight and moved around the plane but wearing it in the heat was not enjoyable, I am just praying for the day when it goes back to some what of a normal size and I no longer have to use the compression stocking. cheers to everyone who reads this and i can empathise with anyone who is having similar problems. Belle41
... View more
Hi I am Belle41 and last year I had sarcoma cancer of my left leg. After the radiaton and massive surgery in July I finally in September returned to work and on the first day i was called to rush down to my Dads place to find him dead on his bed. Also during this time I had to say goodbye to my wonderful dog of 15yrs so 2018 was a terrible year for me. After all of this my life changed dramatically but my husband thinks that the surgery is over, the dog is gone and you have buried your Dad get on with life and put it in the past. I cant do that I live with this every day and if the pain in the leg and swelling isnt enough I see my Dad all the time in my memory dead on his bed. This has affected our marital relationship a lot and I am not sure that I will ever be the person I was before 2018 and cancer. How can I get my husband to understand how hard this is, going to the specialist every 3 months to go thru all the CT scans and MRI'S to make sure the cancer hasnt returned. I would appreciate someones point of view on this as I am starting to feel that I am the wrong person and should get over it but I cant. regards, Belle41
... View more
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.