Hi @Buddyjo, how are you doing today? And how is your son?   Have you given our team on 13 11 20 a call at all? They are best placed to offer advice and recommendations on next steps, especially with regards to your son's specialist.   Not sure if you are aware, but we also run a Telephone Support Group nationally out of Sydney for people who are caring for someone with cancer, which is free and runs twice a month over the phone. I think this would be a good option for yourself to get some support      You can call the team directly on 1300 755 632  or send me an email onlinecommunity@nswcc.org.au with your name and phone number, and I'd be happy to have one of them give you a call. ... View more