Hiya, sorry to hear about your Mum, my Mum has also just been diagnosed with CUP. Discovered after she fractured her hip that a tumour had weakened her femur and that was a secondary. Biopsy wasn't able to tell us what the primary is and she, like your Mum, has tumours in her lung, possibly GI or windpipe and pancreas. Got told this morning they discovered another tumour at the top of her hip. I can't understand how these tumours suddenly keep being discovered given all the full body scans she had after her fracture weeks ago. We've been offered a chance to enter a clinical trial specifically for CUP, maybe check with your oncologist to see if your Mum might be eligible for a clinical trial.
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Five weeks ago my Mum (73) suffered a fractured hip just climbing into bed. Up until then she was fit and active in her community. Subsequent tests revealled her bone had been weakened by a tumour, that tumour was a secondary and other tumours have since been found in her lung and at least a couple of other sites. Biopsy was not definitive so they are calling it Cancer of Unknown Primary. She had to have a full hip replacement with a really long implant and she seemed to be doing ok with pain afterwards and just got out of inpatient rehab. She was readmitted to have 5 days of radiotherapy and she has suddenly had severe pain return. It seems everytime I leave her at the hospital a doctor appears to talk to her so I am getting second hand reports of what's going on from my Mum who has had short term memory problems since the GA and is swimming in a sea of Fentanyl. I am struggling to see her in such acute pain and also struggling to understand whether her pain is hip replacement related or cancer related. She now thinks the radiotherapy is causing her severe pain but surely that can't be the case, isn't radiotherapy supposed to help with pain?
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.