April 2023
1 Kudo
You are amazing Ginni. Thank you for being so generous with your time which has provided us much support during such an uncertain and sensitive time for my family.
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June 2019
My husband has stage 4 metastatic bowel cancer with peritoneal and omentum metastasis. We have an appointment with a Dr Cherry Kho at RPA on the 12/6 to discuss peritonectomy and HIPEC. We are also after information from people who have had the procedure as it’s seems very daunting. We are trying to work out if the side effects outweigh the benefits. We aren’t sure what his PCI is yet, so we may travel the 800km each way to discover it’s a no go anyway
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October 2018
Hi Farmgirl2012 I did not lose my hair and many many others who have had this opp have also not lost their hair. Keeping in mind that chemo has different effects for all people, but as the chemo is internal and not given by the drip the side effects are different. There is a face book group started by a patient here in Australia. It is inclusive for all Australia and New Zealand patients. https://www.facebook.com/groups/Australia&NewZealandPMPcancerPatients(pseudomyxomaperitonei) There are 99 members in it so you should find some answers there as well.
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