My mother has been recently diagnosed with a rare form of Stage 4 Gastro cancer. The diagnosis was made 6 weeks ago at a Western Sydney hospital.
Since the diagnosis we have been shuffled between lung specialists, gastroenterologists, been mistakenly given a referral for another patient and watched my mother decline and deteriorate due to not being able to eat. We finally saw an oncologist today who informed us mum would be eligible for immunotherapy trial on 22 December. We conveyed to oncologist that this was too far away. Oncologist advised that mum could take part in another immunotherapy trial that would cost us $60,000.
The money is not an issue, more problematic is the slow process waiting for treatment and relying on a medical system that seems to favour private patients. I am hoping someone will read my post and offer advice around a similar experience or recommend another hospital or treatment.
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My sister and I have made a similar pact and try not to cry or lose it around mum. Like you, our mother is our everything and given this is a recent diagnosis we are in shock and disbelief. Please don’t cry alone. Cry with mum, cry with friends and cry with loved ones. Being strong is easer said than done.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.