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- About Sooziii
Sooziii
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March 2009
April 2017
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March 2009
Wow! That is great news!You take care now and just concentrate on healing. Look forward to reading your posts.
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March 2009
Hi Annie My husband also has a brain tumour but his is an inoperable infiltrating oligodendroglioma.We have been battling this since 1994 - he had radiation then and had chemo (PCV) in 2005-2006. At the moment it is not active but his is severely handicapped by the tumour effects. The whole left hemisphere of his brain is touched by it.The radiation and the chemo left him debilitated and I guess it took him a good 6 to 8 months to recover.Regards Sooziii
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January 2009
Just to let you all know that Philip lost his battle with the tumour on 5 March.Suzanne http://philipsstory.blogspot.com
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January 2009
Hi AllJust a quick note to say Philip is back in the Palliative Care unit - I've posted an update on my bloghttp://philipsstory.blogspot.com.He has been in since 17 March and at this stage I have no idea when he will come out or if he will.Suzanne
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January 2009
I have to admit that I used to feel guilty when I used time for myself but have no gotten over it - I figure I deserve to have some me time. I have a 'work room' with my computer & sewing machines and when I step into that room I switch off everything else (although I do have a baby monitor with me so I can keep tabs on my husband) and just devote the time to doing thing I enjoy or help me relax. Sooziii
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January 2009
Hi AllBeen out of the 'loop' for a while - my computer decided to die and has been in 'hospital' for a while but now I have it back and trying to catch up with everything.Philip has had an ulcer on the back of his ear for a couple of months and after a few course of antibiotics our Doc decided to do a biospy. Came back as a BCC(basal cell carcinoma). It has now spread to the top of the ear.Because of Philip's history all of his specialists and Drs felt that surgery was not an option - it would required quite extensive surgery to renove it and then grafts. The general concensus was to see if radiotherapy could help.Saw the drs last week (5 of them) and they decided to give him one dose of radiation this Thursday. The reason for one does is that it will overlap the old radiated area and also radiating cartilidge is generally a no-no.The hope is that it will contain it to the area it is now in and it will dry the area up. A couple of the Drs think that it actually from the old radiation.As they say it never rains it pours - this has not been a good 6 months for him.Regards to you all and thanks to those who have either emaied me or left comments on my blog.
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January 2009
Hi Sarah Actually I have most of the strategies you suggested in place, I am a member of the telephone support group, I use the internet to do my grocery shopping, banking, etc and I have Home Care come in a couple of times a week to wash Philip. Home Care are going to give me respite time but unfortunately at the moment they are short staffed and so I have no idea when it will finally start but at least I know its coming. My family work through the day so it is just Philip and I . I also have a work room where I spend most of my days either on the computer, reading or sewing (I make machine embroidered and patchwork quilts).
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January 2009
I am a long term carer and wonder how others deal with the isolation. The person I care for is bed bound and we rarely leave the house. Do you have any strategies for dealing with isolation? I have the added disadvantage in that the person I care for has a brain tumour and so there often is problems in speech and understanding and more often than not it is difficult to have normal conversations.
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January 2009
Hi I don't see any problems in having some sort of visiting time - family would realise you have other commitments. You just need to say something like - Could you come between 3 and 7 because I need to do other things and have commitments at other times. I am sure your family would understand especially as you are trying to cope with two families now. Sooziii
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January 2009
I am sure if you spoke with you friend you would find there are things you can do to help - maybe sitting with her Mum for a few hours while your friend can go out, do sxome household chores for them, do the supermarket shopping. You need to ask them to tell you how you can help make things easier and tell them you wont take no for answer - carers often don't like to admit they need help.
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