August 2019
No I haven't but thankfulfor your suggestion. I'll definitely check it out x
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August 2019
2 Kudos
I haven’t read the full thread (sorry as I’m on a small arse phone) but CHEESE. Definitely one the the top 5 all time best inventions ever. ALL hail Cheese.
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August 2019
3 Kudos
Hi Claire, I’m sorry to hear about your diagnosis. It’s a always a huge shock and you think why is this happening? how are you going now? Are you undergoing treatment? I was diagnosed with endometrial cancer stage 3 in June last year at 36 years old. The only symptom I had was one irregular period and I was immediately at my GP. It took a similar time like you to get a diagnosis - 6 months for me. Leading up to that one irregular period, I was regular and didn’t have any symptoms, past pains (hardly got period pains), endometriosis etc. My GP said it was normal but I was suspect as it wasn't ‘normal’ for me. It took three visits until I got a internal scan which came up with a polyp so I had to book in a D&C. What prolonged the diagnosis was my doctor didn’t take my medical issues seriously and referred me to hospitals outside the catchment area. I was on waiting lists for two major hospitals, but were removed from their lists which they sent a notice via mail. It took over a month to wait to get those letters and I had to start again to get another referral. I went to a private hospital which was still a month wait to get an appointment for consultation. I waited another two weeks to get a D&C and during that time I believe my cancer developed. I went through IvF, and a full hysterectomy in a month after and started a immunotherapy trial after 6 weeks of recovering. Anxiety is sosmthing you definitely feel. However I felt my first 6 months was just about rolling with the punches, and dealing with what was next in terms of action plans and medical appointments. I found anxiety hit me closer just shy of a year since diagnosis. I guess you have time to process everything then. I try to manage it by seeing a psychologist and exercising. I love walks too. I share my concerns with those close to me but I found handpicking a few is well worth it as some friends and family don’t completely understand or as supportive and even though their intentions are good, they just don’t get it. I talk to those that I don’t feel guilty about sharing and am not filtered. hope you’re doing well and please feel free to reach out if you need. all the best! X
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April 2019
You need to get off my page juanpablohernan. Stop advertising and selling to people that obviously are dealing with bigger things, So offensive
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April 2019
Hi Tobi Lovely to e-meet you. Thanks for finding the time to get in touch. I am so sorry to hear what you've been through but by-golly your strength and resilience is impeccable. Congrats on your last chemo! Must have been a relief but also it's tiring. How are you these days? I'm glad you're with us. Being here today is a blessing. I hope you're living your best life and have really good family and friends around you. It's so shit that the doctor didn't take you seriously. There really is an issue with some GPs and first instance medical practitioners that need to listen more and to take more interest in our symtoms. I had the same experience, off and on waiting lists. Even with private I still waited two months to see a surgeon and another three weeks to get surgery. I really think that was the time I developed cancer, and they didn't run scans for the 6 months I was waiting to see a specialist. I tell all my lady friends that no matter what you think might be nothing, have it checked out or get multiple opinions. How are you going physically and mentally? Would like to hear more about how you are and you're experiences if you're keen to keep in touch. I find it hard to meet people in a similar endomentrial boat, which I guess is a good thing. I'm here for support if you need. x
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April 2019
Hi Brightlights, Thanks for getting in touch and sharing your experience with me. How are you going? (waving back) Cancer Connect sounds like a great resource. What kind of program is it? I'd love to get involved. I'm feeling better mentally these days. I have my moments. I've been doing surprisingly well since diagnosis, but had a virus and some aches that makes me freak a little as you would well know. I'm sorry to hear that your mum is going through cancer at the moment. How is she holding up? and yes reminders of how things were like when you were there does create some PTSD. I have been seeing the psychologist at Peter Mac and I have been speaking on the phone to my psychologist who I've been seeing for 10 years. It's all been helpful but think it's also us changing our thoughts, and being stronger and more kind to ourselves. Anyway, I hope youre well, and would love to keep in touch and hear more from you if you have the time of course! x
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April 2019
1 Kudo
Hi Brooke, It’s lovely to meet you. I’m sorry about your diagnosis but so good that you’re doing well. It’s hard navigating the social side of things with cancer. I’ve had a couple of friends drop off but also those that were persistently contacting me when I first got diagnosed, wanting to know what’s going on, but then slowly drop off when they know “you’re doing well,” you really find out who you’re real friends are that’s for sure! Also some people just don’t know how to deal with us. Cancer is not a journey from diagnosis to cure. It’s life long and we need support. how are you going with treatment? How’s your prognosis now? What kind of cancer is it? i allow myself to cry. It’s healthy and we just need to let it out. Give yourself kindness. X
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April 2019
Hi there, I'm new to this forum. It's been 10 months since I was diagnosed with Stage 3 Endometrial Cancer. It took 6 months to get diagnosed after I found that my menstration cycle was out of whack (symptoms: prolonged periods, discharge, bloating). I knew immediately that something was wrong and contacted my doctor who unfortunately didn't take my symptoms seriously. After back and forth visits, I was put on a waiting list at various hospitals for a D&C. After a 6 month wait results came back with cancer. I had a hysterectomy (no children, did IVF with ny partner), now have menopausal symptoms (not too bad) and am currently undergoing an Immunotherapy trial and I am responding well. My metastic tumors are shrinking and the spotting on my lymph nodes have remained the same size. I still worry about the day I may stop responding the treatment. My body sometimes feels strange, and produces weird sensations.I'm very hypersensitive to all body changes which gives me anxiety sometimes. I THINK I'm one of the youngest diagnosed at Royal Womens and Peter Mac but can’t be sure. I have great family and friends support (some not so great) but it can also be a lonely road. Just seeing if there are people out there of a similar age that can share there story and connect?
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April 2019
1 Kudo
Hi everyone, I turned 37 today. I was diagnosed with stage 3CII clear cell endometrial cancer in June 2018. I had a hysterectomy at 36, went through IVF prior and am about to take on cycle 9 of a trial immunotherapy called Durvalumab/Phaedra at Peter Mac. I am responding well to treatment thus far. Despite the good response to treatment and gratefulness that I am here today (bless my amazong medical team and support base), I am still struggling with the social side and mental health side of cancer. I hope to hear and ask more questions on similar experiences. Not all experiences are the same, but only a person with or had cancer knows what you are going through. My concern lately is I've found that I have lost friends but also gained many friends. It's like a rollercoaster of emotions and you really find out who your true family and friends are. I have really supportive family members and friends, but also the shittiest. They will be there when you are diagnosed but once you are responding well, they wouldn't batt an eye. I find come people visit or get in touch only once just to check out "the freak show." I've never asked for sympathy but merely understanding and help when I need. I find that because you don't "look sick" they treat you with less understanding and think you can do all things. That frustrates me. Physical supercedes and internal. They think you're being lazy taking time off or maybe making a big deal of things. I am lucky to survive so far with the stage I have. I'm doing well and my advanced cancer is shrinking. But I still have fear that I will stop responding. I have a less than 50/50 survival rate. I sometimes feel anxious when I feel a weird sensation in my body or if I get a cold or virus. I have panics to myself and cry. I feel guilty sometimes for feeling like this. I should feel lucky and appreciative but sometimes I feel low. Anyway would love to hear other people's view point and take on this and their experience. I'm finding it hard to find young people with endomerial so if you're out there, feel free to say hi as well. x
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