Hi Brooke, It’s lovely to meet you. I’m sorry about your diagnosis but so good that you’re doing well. It’s hard navigating the social side of things with cancer. I’ve had a couple of friends drop off but also those that were persistently contacting me when I first got diagnosed, wanting to know what’s going on, but then slowly drop off when they know “you’re doing well,” you really find out who you’re real friends are that’s for sure! Also some people just don’t know how to deal with us. Cancer is not a journey from diagnosis to cure. It’s life long and we need support. how are you going with treatment? How’s your prognosis now? What kind of cancer is it? i allow myself to cry. It’s healthy and we just need to let it out. Give yourself kindness. X
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Hi there, I'm new to this forum. It's been 10 months since I was diagnosed with Stage 3 Endometrial Cancer. It took 6 months to get diagnosed after I found that my menstration cycle was out of whack (symptoms: prolonged periods, discharge, bloating). I knew immediately that something was wrong and contacted my doctor who unfortunately didn't take my symptoms seriously. After back and forth visits, I was put on a waiting list at various hospitals for a D&C. After a 6 month wait results came back with cancer. I had a hysterectomy (no children, did IVF with ny partner), now have menopausal symptoms (not too bad) and am currently undergoing an Immunotherapy trial and I am responding well. My metastic tumors are shrinking and the spotting on my lymph nodes have remained the same size. I still worry about the day I may stop responding the treatment. My body sometimes feels strange, and produces weird sensations.I'm very hypersensitive to all body changes which gives me anxiety sometimes. I THINK I'm one of the youngest diagnosed at Royal Womens and Peter Mac but can’t be sure. I have great family and friends support (some not so great) but it can also be a lonely road. Just seeing if there are people out there of a similar age that can share there story and connect?
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Hi everyone, I turned 37 today. I was diagnosed with stage 3CII clear cell endometrial cancer in June 2018. I had a hysterectomy at 36, went through IVF prior and am about to take on cycle 9 of a trial immunotherapy called Durvalumab/Phaedra at Peter Mac. I am responding well to treatment thus far. Despite the good response to treatment and gratefulness that I am here today (bless my amazong medical team and support base), I am still struggling with the social side and mental health side of cancer. I hope to hear and ask more questions on similar experiences. Not all experiences are the same, but only a person with or had cancer knows what you are going through. My concern lately is I've found that I have lost friends but also gained many friends. It's like a rollercoaster of emotions and you really find out who your true family and friends are. I have really supportive family members and friends, but also the shittiest. They will be there when you are diagnosed but once you are responding well, they wouldn't batt an eye. I find come people visit or get in touch only once just to check out "the freak show." I've never asked for sympathy but merely understanding and help when I need. I find that because you don't "look sick" they treat you with less understanding and think you can do all things. That frustrates me. Physical supercedes and internal. They think you're being lazy taking time off or maybe making a big deal of things. I am lucky to survive so far with the stage I have. I'm doing well and my advanced cancer is shrinking. But I still have fear that I will stop responding. I have a less than 50/50 survival rate. I sometimes feel anxious when I feel a weird sensation in my body or if I get a cold or virus. I have panics to myself and cry. I feel guilty sometimes for feeling like this. I should feel lucky and appreciative but sometimes I feel low. Anyway would love to hear other people's view point and take on this and their experience. I'm finding it hard to find young people with endomerial so if you're out there, feel free to say hi as well. x
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.