September 2019
5 Kudos
I have no family or friends for support. My brother who i helped support him when he had prostrate cancer and he had tumour successfully removed told me during an argument ....your gunna die in misery and pain. Just his way of helping....kill me. There is no cure for PNET. I can not toletate the injections which are my only hope in extending my life and surgery is pointless. All conversations with Drs now are about " when the time comes" ie for each stage i will go through until....."" the time comes " I have no future. My life is basicly over. I will just be existing until the time comes.
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September 2019
1 Kudo
Hi Lee Roy. I totaly understand your comments and in no way offends me at least. I feel the same with my Pancreatic Neuroendocrine Tumor. I am sick of it all and im only at the begining of the end and have alot of suffering to do and have already. I am now getting palitive care and my life is much better now that my pain and symptoms are being properly dealt with so i can be more functional more days instead of being bedridden basicly from pain and Lanreotide side effects and depression and anxiety. I hope things in your life can be the best they can under the circumstanes. All the best Lee Roy.
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September 2019
Hi. It is good to hear someone find a way to try beat the chemo blues and also keep up the sense of humour. I hope all works out for you. Best wishes and take care.
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September 2019
Yes drinking lots of water is important in many ways. Reminds me i could drink more myself. T.C. Everyone.
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September 2019
1 Kudo
Hi. I am wondering what kind of experiences anyone with pancreatic neuroendocrine tumour has had while taking Lanreotide. I had bad experiences trying it and had to stop the treatment. Hope some people are able to comment. David50
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