Thanks so much for your reply. My comment about vomiting was he truly hasn’t vomited once, he felt like it but hadn’t up till tonight. Then he made up for it 🤮 He’s still in hospital after the PEG insertion, they haven’t been able to up the rate too fast because of the nausea. They still bring him a tray of food at every mealtime, soup, jelly, custard, that kind of thing. ( he just doesn’t want to eat it) I was encouraging him to try and get some down, now I feel bad as I really think he probably has this taste thing where everything tastes rancid. I think he will just rely on the PEG and sounds like that’s ok. He can drink water still ok at the moment. He’s not a big guy, started at 88 kg but is down to 82 already. I will show him this thread and see if I can encourage him to join in. I think it might be helpful. He’s not one for sitting around, he’s pretty active,(usually) not much of a TV watcher. But this has just zapped his energy and he feels he can’t concentrate on anything. I get the distraction thing, we have all tried, puzzle books, jigsaws, headphones to listen to music, books, podcasts etc. but so far he hasn’t wanted to try. Did you have any counselling to get you through this? I thought it may be helpful but don’t know who or where to ask.
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