hi I to have neuroendocrine cancer and have had for four years now. I do know how you feel it is so hard to find others for support. I have had two rounds of chemo 12 cycles each time and I am really finding the side effects caused by chemo just keep come. I have found trying to get psych support impossible even though I am a social and trained in many forms of counselling. I just really want to chat with people like me that have this form of cancer. There is some support out there but I don’t thing it replaces peer support. Would love to start a chat group for those with neuroendocrine cancer so we could all support each other during really stressful times. My contact is lindabrenvos@hotmail.com.  ... View more

I'm not feeling myself after surgery. A little emotionless, catatonic. Is this part of surgery recovery? I feel no motivation, no pleasure from thing that used to make me happy. Will I return to who I once was? Anyone else having anxiety,trouble sleeping, feel different? ... View more

Thank you so much, Nas!   I will definitely take all of that on board and mention to her about the salt water! I have been super careful when purchasing her gifts, making sure they are safe for people having chemo - I'm very picky!   We have a really strong understanding of one another; I give her space and just send her pics and voice messages that she can listen to when she has the time and energy.    One thing she did mention on the phone to me the other night was a treatment the doctors wanted to start her on to strengthen her bones but she didn't want to have it because it makes your teeth fall out? I will have to get the name of it from her and look into the forum further. I know she wanted me to help her find an alternative supplement for bone strength to avoid the injections.   She is struggling financially so I am planning to start a GoFundMe campaign for her, but I need to wait until she has the time and energy for that phone call so I can get all the correct details for it. Her super fund won't release her money for some reason which is completely frustrating! I am going to help her in changing companies so she can get her money. No one going through so much should have to worry about putting food on the table or paying bills. I will fight for her! ✊🏻   Thank you so much again for taking the time to reply to me and giving me all those helpful tips! 💜 ... View more